One Fine Burger

By Mark E. Smith

It’s a simple, quiet place. The confusion and struggle of a younger man are long gone. It’s reminiscent of when I look out through the pane windows of our farmhouse on a wintry Sunday morning. There’s something gentle and still about it all – winter and life.

It’s another Friday night and my wife and I are the early crowd at a local restaurant. It’s the kind of restaurant where some go for special occasions; others are regulars, older folks who have dinner there several nights per week. We’re neither. It’s close to home, and despite its higher-end menu, I prefer to sit at the vintage mahogany bar and get a basket of bread, one fine burger, and just be, with my wife. There’s no complexity to it. It’s all comforting – my wife, the food, the atmosphere.

The owner-chef and I have an understanding. We’re acquainted just enough to be on a personal basis. He’ll sit with us and chat. We’ve been open to the degree that we both have shared that we come from families on the other side of the tracks, as he’s politely put it. When you come from that type of family and get to a point in adulthood where you’re no longer running, no longer hiding, no longer out to prove yourself, and you don’t need to worry about being able to pay the utility bill each month, life becomes easy, almost effortless – at least emotionally. So, what’s the key to moving beyond it all, where you’re no longer running, hiding, or proving, but just being, finally at ease?

I’ve come to understand that there are two sides to living with a difficult past: sometimes we hold on to the past and sometimes it holds on to us. Some of us, with struggle, get to a point where we can, for the most part, let go of our pasts. For me, time has equaled distance in that process. The more that time passed, the less my past affected me. Sometimes we can move beyond all in a literal sense by simply moving our lives forward. Education leads to career, which leads to financial security, just as finding love leads to understanding love, and at some point we transcend from what we knew into what we know, all for the better. That’s the key to the best of my understanding of how to change one’s life and leave the past in the past – we realize that we can work to move beyond what we’ve known, into a life of different possibilities, potentials, and outcomes. It’s not easy, but the time-distance equation makes it possible.

On the other hand, when our past has a hold of us, it’s a harrowing plight, as well. We live in a culture that propagates the belief that anyone can “pull oneself up by one’s bootstraps.” It’s not just physically impossible – try pulling on your shoes to lift yourself off of the ground! – but it’s also emotionally impossible when one’s past has its grip. We can’t expect anyone to just get over it and move forward. Trauma is far more complex to heal from.

We know that the healing process is subjective. Of course, the severity of the trauma plays a role, as does one’s psychological and physical health. Where the subject gets tricky is when, say, siblings grow up in the same dysfunctional family and one is able to move beyond the trauma while another continues in its grip. Similarly, in my world, I often see individuals of the same severe injury or illness, but some cope in positive ways while others struggle in a negative space. Therefore, it’s difficult to say who escapes the grip of trauma.

Regardless, it’s vital to have empathy and utmost respect for both plights. After all, both plights involve just as much struggle. We can’t look at someone who’s moved beyond his or her past and say, You’re lucky, because we know the phenomenal amount of work it took. Similarly, we can’t look at someone who’s struggling in the grips of his or her past and say, You’re just not trying hard enough, because we know that’s not how the process works. Again, one only knows what one knows until one knows differently – and there’s no single or direct or surefire route to getting to that point. If you swam across a channel of water, knowing how tough it was to cross, you can’t look at those still in the middle, struggling, with anything but empathy and respect.

My wife and I try to remember if I ordered my burger medium-rare or medium-well? I don’t recall. I simply know that, regardless of how they’re cooked, such burgers taste better than ever these days.

Quitting is Winning

By Mark E. Smith

I saw a video of a Little League coach giving his team a pep talk. He rolled out every possible cliché and movie line one can imagine to pump up the kids. These talks work well with 10-year-olds, but not so much for us adults.

See, one of the clichés the coach invoked was, Winners never quit, and quitters never win!

We’ve all heard that saying and it sounds great. However, if we’ve ever struggled, then succeeded at an accomplishment, we also know that that saying isn’t true.

In order to succeed, we do need perseverance, but only in the most successful ways. It sounds great to say, Winners never quit and quitters never win, but such a black-and-white situation is rarely found in life. Perseverance only works when combined with adaptation. If we’re not succeeding at a task, but just keep doing what we’re doing, we’re going to fail. Persevering means constantly moving through that which isn’t working by finding different approaches in order to achieve success. Winners always quit doing that which isn’t working!

I’ve faced a lot of adversity in my life and I’ve always known when to throw in the towel and try a different approach. The key I’ve learned is to be realistic, not dogmatic. I remember going through occupational therapy as a child and was taught single ways to accomplish tasks. However, the approaches, although text-book to the therapists, rarely worked with my abilities, or lack thereof. When I couldn’t accomplish tasks as directed, I simply stopped trying – I quit. Even as a child, I understood the futility of metaphorically beating my head against a wall by pursuing failing approaches. It didn’t mean I was a quitter. Rather, it meant I had good sense. I then pursued other approaches that enabled me to successfully accomplish the tasks and move on to more, arguably to degrees of success greater than my therapists fathomed possible. Winners stop pursuing failing strategies and adopt those that work.

If an aspect of life clearly isn’t working, stop doing it. It doesn’t mean that you’re a quitter; rather, it means that you’re motivated to pursue greater paths. We shouldn’t hold on to that which isn’t working, as like an anchor, it holds us back. I read a great quote that said, “Don’t worry, I’m not quitting. I’ve decided I’m going to stay and make life a living hell while I run this business into the ground…” That’s crazy talk, but many literally do just that!

Quitting is, in fact, a part of the path to success. After all, some kids quit baseball for music lessons – and rock stars are made.

Not Giving A Blank

By Mark E. Smith

I’m a firm believer in not caring what the blank other people think of us. In fact, it’s a skill that I developed living with cerebral palsy as a child and one I’ve continued as an adult – and it’s served me phenomenally well.

See, I’ve faced being viewed as “different” my whole life. As a child, I was taunted and teased at times. I wish I could say that changed in adulthood, but it merely shifted toward more discrete forms of ignorance – looks, reactions, comments. People can be cruel toward those of us who are seemingly different.

However, truly not giving a blank proves the ultimate antidote toward those who may try to treat us differently. It doesn’t mean not caring what anyone thinks of us. It means having the confidence and self-esteem to not care what inappropriate people think of us. I’m a fan of constructive criticism. I truly care what my wife or colleagues think of me, and I want to improve myself when needed. Yet, when it comes to strangers or self-appointed critics, I don’t give a blank what they think of me. I learned as a child that I could either let the negative attitudes of others stop me or I could own my destiny and not give a blank about what others thought of me and move through the world on my own terms. I chose the latter.

My I-don’t-give-a-blank attitude has served me well. I’m comfortable being me, regardless of what others may think. I garner attention rolling into, say, a restaurant. But, I hold my head high, smile, and if I’m a spastic mess at that moment, all the better. Here I am, and I don’t give a blank! We’re each unique, and owning who we are is key. We can either let others define us or we can define ourselves.

So, how do we do this consistently – that is, not give a blank what others think?

Firstly, let us move beyond our own self-consciousness and focus on others. It sounds like an oxymoron, but the truth is, when we’re consumed by what others think of us, it’s a form of narcissism – we’re making the world all about us. If we focus less on ourselves and more on other people, we’re less self-conscious and more engaged. If you watch really confident, comfortable people in social settings, you’ll see that they’re very engaged with others. When we focus on others, we release focusing on ourselves, and we’re not dwelling on what others think of us.

Secondly, extend people the benefit of the doubt. Just because someone doesn’t understand your situation doesn’t mean it’s personal. People have different life experiences, and just because someone is ignorant toward yours or mine, shouldn’t be taken to heart. As the proverb says, live and let live.

Lastly, focus on what you’re doing, not what others may be saying or thinking. As an adolescent, a group of kids teased me as I struggled to push a manual wheelchair up a hill. I could have been deterred by them, but I chose to stay focused on surmounting the hill. Focusing on the hill voided the taunting.

Really, all of us should carry an I-don’t-give-a-blank attitude, wielded at the right time. Of course, we should care what certain people think. However, we shouldn’t give a blank what everyone thinks. Move through the world and let the chips fall where they may. Better yet, don’t worry where they fall at all!

Living By The Hour

By Mark E. Smith

As an undergraduate, I had a philosophy professor who was a former Catholic priest who’d gone on to marry and have five children, followed by a bunch of grandchildren. He taught via the Socratic method and promoted self-cultivation among his students, so I should have known that I was in for it, so to speak, when I showed up for class late one spring morning.

“Mr. Smith, how nice of you to finally grace our presence,” he proclaimed in front of the class. “What was more important than our class this morning?”

“I just got a puppy and I had trouble getting him squared away because he wanted to play outside rather than go in his kennel,” I replied.

“What kind of puppy is it?” he asked.

“A golden retriever,” I answered.

“So, rather than staying home on this beautiful spring day and playing with your golden retriever puppy, you came to class?” he questioned.

I just looked at him. He walked over to the classroom door and held it open.

“Mr. Smith, you shouldn’t be in class today,” he asserted. “Clearly you have a lot to learn about life. When you have the opportunity to play with a puppy on a beautiful spring day, you should be wise enough to seize such moments. Go play with your puppy. We’ll see you Thursday.”

On that note, I went home and spent the day with my puppy. In the process, my professor taught me a lesson that I’ve carried throughout life: Let us use our time in the most meaningful, fulfilling ways, rather than simply letting it pass or our arbitrarily following a routine.

Now, I’m not saying that, as adults, we should disregard responsibilities and engage in such activities as playing with a puppy all day. That would be over-indulgent. However, how many of us have lost sight of the invaluable nature and opportunity of time? How many of us aren’t realizing that how we spend our time directly dictates the quality of our lives and the way we impact others?

Among the greatest equalizers in all of humanity is time. With the exception of varied lifespans, time is universal to all of us, with no distinction. For example, from the richest to the poorest, we each have from 11:00 AM to 12:00 PM each day. What we do with that single hour is completely up to us. Do we use it for the better or do we squander it? Do we use it to help or to hurt? It doesn’t matter who we are or where we come from – we each have the same hour, with the same potential. The only difference is, how we choose to use it.

I practice what I’ve coined the “one-hour concept” because it’s so achievable toward not just bettering our lives, but also those of others. We all have routines we logically follow – I had to go to that philosophy class to graduate college. However, we all can find an hour or more each day to lead more fulfilling, impacting lives.

My wife and I have been in a routine for several years where she picks me up from work, we go home, I turn on the news and go through the mail while she works on dinner. Our routine is normal and responsible, but hardly life-affirming.

On a recent Monday after work, I suggested to my wife that rather than go home, let’s take an hour and go try a new, hip bar and bistro. We felt like kids sneaking around, as it was so far outside of our weekday routine. Yet, as we sat in the funky joint having a hotdog and a shrimp sandwich with chips, listening to David Bowie, it was one of the best dates we’ve had. And, we were home by 6:00 PM!

I practice the one-hour rule in my professional life, as well. I always help whoever is in need, whenever. Yet, separate from all of my areas of responsibility, I set aside one hour per day to solely focus on resolving consumers’ mobility issues. It’s on my company’s public calendar, so colleagues know to book my meetings around it. Often, I shut my office door, silence my phones, and go through the steps to meet each consumer’s needs, one by one. I’m constantly amazed at how one focused hour allows me to serve so many in such meaningful ways.

We typically don’t give a lot of thought toward time – that is, until it’s too late. A doctor once told me that the most common wish among the dying is to have more time to spend with loved ones. I’ve wondered if the tense of that statement is true? Could it be that what many mean is, I wish I had spent more time with my loved ones? It’s tragic if that’s the case, but for you and me, it’s not too late. We can make our hours about creating cherished memories, and say at the end of our lives, I’m glad I lived life as I did, connected and engaged.

There can be a lot of drudgery in our lives. Yet, every hour provides us with an amazing opportunity to not just pass time, but to create life-affirming moments of fulfillment and impact. Make the most of your time, doing what you love and positively impacting others, for the gift of time is just that – a gift.

Doing Best Is Seeing Best

By Mark E. Smith

My wife and I were at church and a gentleman came up to us.

“I know it took your family more than most to get here this morning and I want you to know I appreciate that,” he said.

Based on his genuine demeanor, his words weren’t patronizing but compassionate and empathetic. Between my disability and our youngest daughter’s, it does take a lot for our family to get ready each morning.

What struck me about the gentleman’s kind words was that rather than being oblivious to our challenges or, worse yet, stereotype or judge us as that family with the wheelchairs, he saw us as real people doing our best.

Often, we see strangers who may appear out of the norm. Many of us are quick to make assumptions or judge others. I’ve done it and strangers do it to me. But, we know it’s not right. So, what’s the life-inspiring alternative?

What if like the gentleman at church, we simply extend everyone our sincere belief that most do their best? It changes the whole dynamic, doesn’t it? We go from judging to respecting, from differentiating to embracing. We rightfully apply a sense of humanity to all. As I always say, we never truly know what anyone is going through. Why not extend him or her the benefit of the doubt?

Being a semi-public figure, I have critics, people who, more bluntly, despise me. I recently met one at an event. The individual started out very hostile toward me, but by the end of the conversation the individual, who had a disability, explained that living with a disability is so hard that death would be a better alternative. The individual had expressed tremendous anger at me online, but I then in person understood that the anger wasn’t about me at all, but toward the individual’s own circumstance. The person was simply doing the best to cope, even though it wasn’t the healthiest way.

So frequently, we take strangers’ actions toward us personally and become angry or hurt. But, again, we have the ability to extend empathy and compassion. As one with a disability, I’m often a magnet for odd comments from strangers and I don’t take it personally, but presume that they’re doing their best. My wife and I once had a doctor, born and raised in another culture, ask us a myriad of questions about our family and life. He screamed, Congratulations!, after each answer. We weren’t offended, but recognized that he wasn’t raised with disability awareness, that he was doing his best. He genuinely meant well.

Yes, it’s true that there are people doing really lousy things. But, most people are truly doing their best. They may come from backgrounds and lifestyles different from yours or mine, with behaviors and ideologies we’d never engage in. Yet, there are reasons for why we each are who we are, and it’s vital to extend empathy and compassion to others, just as we wish extended to us.

The fact is, if we wish to see humanity at its best, we must first see the best in humanity.

Going All In

By Mark E. Smith

It was the sickest I’d ever been. In a matter of days, I went from the masculinity of a mid-forties man to the physical dependence of an infant. A corner was turned, and I was in unknown, uncontrolled territory.

Living with a disability may seem unique, as with my cerebral palsy, but there’s an equilibrium to it. Yes, there are limitations inherent to my disability that require assistance from my wife in personal ways that we’re both comfortable with. But, we all have discreetness and self-consciousness boundaries. In fact, such boundaries seemingly help us define our own sense of masculinity or femininity. Put simply, we say, I’m comfortable with having my spouse see me this way, but can’t imagine ever being comfortable seen in XYZ circumstance. These boundaries vary from person to person, couple to couple, including among my wife and me.

In my time of need and illness, I had no choice but to give up such preconceived boundaries. My wife was there, willing and able to help. I had to accept it based on my illness. I had no choice but to remove my constructed boundaries.

Often, we look at those jumping in to help as the strong ones, and they are. However, as I continue learning, it takes tremendous strength to let others in to help. However, when we do, it takes us to far deeper levels of connection and love. Boundaries can be great, but self-constructed ones of self-consciousness – which all of us have in some forms – can serve as walls that prevent us from getting closer to others and letting others fully know us. For me, sick in bed, totally dependent upon my wife, I realized not just her unyielding love and devotion, but how letting down my own guard allowed me to more fully immerse in our love.

All of this got me thinking, why does it take such extreme circumstances for us to allow ourselves to remove our boundaries, to further trust in love? Why do we cling so tightly to self-consciousness that it prevents us from fully opening ourselves to others?

Of course, the answer is, vulnerability. By nature our biggest fear, admit it or not, is rejection by those we love. Sure, we open ourselves up to love, but most often we have a last-ditch protection mechanism that prevents us from going all in – that is, we hold back in a few areas. However, if we’re being prudent and healthy in our relationship, there’s zero risk, so holding back simply holds us back. It shouldn’t take a situation like a serious illness to forego self-consciousness and fully trust in the deepest forms of love. Here’s all of me for you to love, and I cherish having all of you to love….

Trusting fully in deep love is tricky. It can expose our vulnerabilities, require us to face them, and then let them go, all of which is scary. However, when we do so, we create a pathway to loving and being loved that’s deeper and safer than we’ve ever known. Love is always uncharted territory, and allowing ourselves to follow it to greater and greater depths is life’s most miraculous journey.

The Bold New World of Televisions

By Mark E. Smith

I’m lying in bed. The TV won’t work, something about it cannot connect to the network. I’m old enough to remember when simply pulling a knob turned on a TV – and it worked every time. Now, I just stare at the spinning ceiling fan.

I think about my conversation with my best friend, Drew, today. He’s the wisest soul I know, and he inexplicably knows more about any subject than he should. We talked about what it’s like being in the throes of life crises. So many people tout the growth that comes from it. However, those are people speaking from the other side. As Drew noted, when you’re in the middle of it – an ended relationship, a health crisis, a job loss – you struggle just to breathe, where five minutes feels like an hour, a night feels like an eternity. There’s a tunnel vision in those times, the loss of everything joyful. No one stops to smell the flowers when it feels like life, itself, has stopped.

And, it’s OK, it’s all OK. Adjusting to a new normal is… well… normal. When we have the wind knocked out of us, we need time to get back up, we need time to rediscover ourselves in this new space. Anyone who tells you to snap out of it has never been there, or worse, has forgotten what it’s like to be there. There’s a time to be in such a space, to just be.

My wife comes in and wonders why I’m not watching TV? I explain the technical issue, and she lies next to me, staring at the ceiling fan, also lamenting the loss of televisions with antennas that simply turned on.