humility – Page 11 – PowerchairDiaries

Turning Off Autopilot

By Mark E. Smith

I’ve spent a lot of my life around two areas – boats and dysfunction – and what I’ve learned is that in either case, if we’re not careful, “autopilot” will fail us.

See, living in dysfunction is a lot like being aboard a boat running on autopilot – we’re not questioning or changing, but continuing on a haphazardly set course. And, as waters worsen or dangers approach, if we don’t take control, our boats – read that, our lives – will collide with them in the most harrowing ways.

For me, taking life off of autopilot has been a very personal process. As one raised in a dysfunctional family, I only knew what I knew, and my emotions were on autopilot for a long time. Turning off that autopilot proved harder in some ways than others.

Alcoholism, addiction, poverty, and a lack of education were all fairly easy for me to avoid because my awareness was so blatant. When I had welfare Christmases, parents with ninth-grade educations, and an unbroken family lineage of alcoholism and addiction, it was fairly obvious that our family’s autopilot was a disaster in full swing, cruising in the Oblivion Sea.

For me, turning off autopilot started as young as 10, but really by my teens I saw my life set on a course for collision and I took control of the helm. I saw everyone around me literally dying from living on autopilot, and I knew I had to turn that monster off for myself. Once aware and assuming conscious control of my life, I steered around the many dangers my family collided with. However, I was fortunate in that aspect – that I somehow had the understanding to do so – where I empathize with how difficult it becomes for many to turn off autopilot the longer we’ve unwittingly been on it, often from birth. It’s simply not as easy as my words read to break cycles of dysfunction, to turn off autopilot.

And, emotionally, I absolutely remained on autopilot for quite some years. Again, for me, getting off of autopilot has proved harder in some ways than others. I grew up knowing that those who loved me also hurt me, so love and hurt were intertwined. My head was off of autopilot – sober and successful – but my heart was still running its course. And, so I found myself in relationships of all sorts – from marital to sibling to friendship – that hurt, that as the psychobabble calls it, were toxic. It’s what I knew, what I grew up in, and continued living. That’s the sinister beauty of autopilot – once you’re on it, it continues on a course without any effort by you.

Awareness, though, once again proved my switch to turning off autopilot. Once I was aware that my heart was on autopilot, steering me into collision after collision, all my relationships changed. Some I just cut off; some I set healthy boundaries; and some I started anew with healthy individuals.

I’m still not perfect at any of this, and never will be, but every once in a while, when the autopilot that I grew up in intrinsically kicks in, my awareness takes the helm in a reflex type action, where I’m able to quickly correct and stay on a healthy course.

Through what I’ve lived and learned, I see among the greatest gifts that we can give others is the truth that they can break cycles of dysfunction, turning off autopilot. There’s a big difference between preaching from the mouth and speaking from the heart. I believe in speaking from the heart, and when a young person at risk in my circle was recently running on autopilot – it’s what they grew up in, escaped, then were thrust back into it based on a traumatic chain of events – I took the time to remind them of how far they’d come, to be aware that although understandably they’d temporarily returned to autopilot, awareness was what would keep them emotionally safe – that is, regrasping the helm and steering a healthy course.

Now, it’s not possible for everyone to just turn off autopilot and get their lives moving in healthy directions. We know of the medical effects that alcoholism, addiction, and mental illness have on those immersed in those conditions. These aren’t autopilots that just turn off. But, for the rest of us – and especially youth in our families and communities at risk – the ultimate intervention isn’t once there’s no turning off autopilot, but acknowledging our vulnerabilities to it early on, and elevating our awareness to the point that we turn it off and truly take control of our lives in healthy ways before life is spiraling beyond our control.

The fact is, we have no choice in how the dysfunction of autopilot gets turned on in our lives – typically, we’re born into it or trauma ushers it in. However, when we’re aware that it’s been turned on and we are running on it or at risk of running on it, that’s the time to turn it off. See, turning off autopilot removes continuing living the pain of our pasts, and allows taking the healthy helms of our futures. May you and I chart the healthy course our lives are meant for.

Meals or Feasts?

By Mark E. Smith

My life has been somewhat extraordinary in that I’ve known both sides of human experience – that is, what it’s like to live with exceptional adversity versus what it’s like to experience great fortune.

However, while my own life has made me acutely aware of extremes, it’s the individuals I encounter that have raised a profound question for me. In parts of my life, I interact with those facing tremendous adversity, while in others, I interact with those of great fortune. Overall, I’ve witnessed that people are people, and no matter how different two individuals’ life paths are, there’s a uniting humanity – people are people.

Yet, I’ve also witnessed a juxtaposition that’s intrigued me. If I shared that I knew a 40-year-old mother with progressing ALS who was bitter at the world because she would not live to see her children graduate high school, we all could empathize with her. On the other hand, if I shared that I knew a 40-year-old mother of great health and wealth who was dedicated to serving her community, we could empathize with her, as well. In both these scenarios, we could say that both women are doing the best that they can. And, indeed, in some form, I’ve known these women – and likewise men in the same situations – many times over.

But, here’s where the intriguing juxtaposition comes in. I similarly meet those facing tremendous adversity – literally that 40-year-old mother dying of ALS – who approaches every day with grace and joy, appreciative regardless of the devastating blow life has dealt. Meanwhile, I encounter those who are extremely fortunate – with health and wealth and thriving lives – who are bitter, jaded, living with a miserable sense of entitlement, as if the world owes them. How is it, then, that someone facing unimaginable adversity in life can live with such grace, while by contrast, I’ve more than once witnessed someone of great health and wealth throw a tantrum over the smallest, most trivial circumstance? How can this juxtaposition logically occur?

The answer is, gratitude. See, gratitude is the great equalizer – and you have it or you don’t. If you have it, it’s irrelevant what your situation is in life, as you’re grateful regardless of any circumstance. However, if you don’t have gratitude, you’ll conversely be bitter and jaded no matter how fortunate your plight. In this way, what life deals us has no bearing on our outlook – unimaginable adversity or great fortune are of no matter. What dictates our perspectives is whether we have… gratitude.

Author Melody Beattie writes, “Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend….”

Therefore, if we are to understand the true origins of fulfillment in our lives and whether we find true contentment, we don’t need to weigh the scales of adversity versus good fortune. Rather, to understand fulfillment and contentment in our lives, we merely need to consider the levels of sincere gratitude we possess.

One Person at a Time

By Mark E. Smith

If there’s one principle I’ve learned in my 20-year career, it’s that you can have a tremendous impact on a global scale by simply serving one person at a time.

Somehow a mythology has evolved over recent centuries that in order to have a notable impact on the world, we have to do a single, epic act: invent electricity, cure a disease, write an ageless book, or any number of extraordinary acts that win a Nobel Prize.

However, that’s not, in fact, how we change the world. The fact is, if you look at the way the world’s changed over the past 100 years, it’s been by far because a single person had the vision to change lives of individuals one at a time.

We’re not a country of advanced automobiles because Henry Ford magically gave every person in America a car at once and changed the world. Rather he sought to build a car that individuals could buy, one by one, and individual lives changed, ultimately creating a cumulative effect. Fast forward toward the end of the 20th century, where personal computers fueled by Gates and Jobs, among others, and we saw the same process, where PCs were adopted by individuals one by one, where slowly the movement changed our lives. Now, in the present, look at Facebook – 1.59 billion users didn’t just pop up, but joined, one by one. Indeed, even in the most monumental success stories of world change, they’ve all started with individuals and flourished by the individuals’ lives impacted by them, one by one.

The Gates Foundation has been on a mission to change the world for millions of children in third-world countries. Over 1.5 million children die each year from diseases of which there are vaccines, but to which they don’t have access. The Gates Foundation has been eradicating this issue. How? By vaccinating one child at a time.

Now, most of us aren’t Fords or Gates. However, we possess the same ability to profoundly impact the world – by making a difference in the lives of others, one person at a time. It doesn’t matter who you are or what you do. All you have to do is be aware of who around you needs a touch of whatever it is you have to offer. Maybe you have a particular skill set that many can use, but not everyone can afford. Think of the difference it makes in a single life when you donate that skill to someone in need. Think about the contractor who quietly fixes up an elderly widow’s home; the college math student who tutors inner-city kids across town; the auto mechanic who fixes the single father’s truck at no charge so he can get to work and support his kids; the store clerk who asks everyone how they are because she truly cares; the pizza shop owner who makes every customer feel like family; the person who always answers the phone when a friend just needs someone to talk with. The list goes on and on, but the principle is the same: we each have the profound power to change the world one person at a time.

We can have a way of saying to ourselves, I’m nobody, with nothing to change the world. No, we’re each somebody – unique, with so much to offer, so many ways to change the world one person at a time. It doesn’t matter who you are, where you live, or what you do – you have the ability to improve the life of another person, and that single act alone does change the world.

I recently was interviewed, and the interviewer asked me what I saw as the greatest accomplishment of my career?

“I shipped a farmer in Iowa a part for his wheelchair this morning,” I said.

She looked surprised at my seemingly simple answer considering the complexity of my career.

“Is that an unusual situation?” she asked.

“No, it happens every day,” I replied. “But, you make a difference on this planet by embracing one person at a time.”

As Mother Teresa put it, “Never worry about numbers. Help one person at a time and always start with the person nearest you.”

Crystal Glasses of Ginger Ale

By Mark E. Smith

By the time I was vomiting uncontrollably in the shower that eve, I felt it a mixed blessing. On the one hand, I made it through a day that encompassed a media feature of my company, and I suspect vomiting in front of the press and my CEO may have influenced the story a bit. The press is fickle that way.

On the other hand, I was perplexed how I became so sick, so fast? And, so, as my wife brought me a baker’s bowl, so I could make it from the shower to the bed, vomiting on the move, I sought her expertise. After all, she’s a skilled medical professional – or, at least a high-end optician. If you can’t trust an optician to advise you on stomach viruses, who can you trust? OK, you can’t trust an optician at all for medical advice. While my wife could fit me for awesome eye wear, she was likewise clueless as as to why I was suddenly so sick?

Once in bed, things got worse. In my 45 years of having cerebral palsy, I’ve learned an invaluable lesson: the one downside to not being able to walk is not being able to walk. And, so as I felt my condition worsening, unable to sprint to the bathroom, I broke out my secret weapon: Depends. But, here’s the thing – as much as Depends are marketed as “underwear,” they’re diapers, poofy, odd diapers, sans the tape closure tabs. So, there I sat in bed – 1 am, 2 am, 3 am, 4 am – wearing a diaper while vomiting uncontrollably all night into a baker’s bowl. Some might find that embarrassing, but I found it an ingenious evolutionary system of survival. Prehistoric man and his tools had nothing on me – I had Depends and a baker’s bowl.

By the next day, I was gut-wrenching sick, vomiting ad nauseam, to painful dry heaves beyond anything I’d ever experienced. On the upside, it gives you one heck of an ab workout. I see dry-heave gyms catching on. But, I was getting sicker and sicker.

Now, here’s the brilliance of medical science: when you’re vomiting uncontrollably, they tell you to drink lots of clear fluids – all so that you can promptly vomit them back up. Gatorade in, Gatorade out. Water in, water out. It’s like I was the opposite of a waste water treatment plant, putting perfectly good fluids in me only to vomit them back up as bio hazard.

Finally, I settled on ginger ale. No, it wasn’t anymore effective than the other liquids. However, there was an elegance to it. Darling, won’t you please bring me a glass of ginger ale, with ice, in our finest crystal? And, that my beautiful wife did. Was I a sick, pathetic mess? Absolutely. I was in bed, wearing a diaper, vomiting into a baker’s bowl! But, the crystal glasses of ginger ale added a certain class to it all – even as I vomited every last drop. I was a hint of a British gentleman – vomiting, wearing a diaper.

After a few days, my wife wisely wanted to call an ambulance. I was only getting worse, unable to eat in days, and arguably pushing the line toward dangerous dehydration. My wife knew best. However, I’ve long trusted a slightly off-kilter Italian – my doctor. He’s long lectured me on trying to stay out of the hospital. English is his second language, so I don’t always know what he’s saying, but his theory is something to the effect of: Hospitals are full of viruses. You eat bad fruit, go to the E.R., touch something, get a flesh-eating bacteria, and, boom, you die! Yes, he’s prone to slippery-slope exaggeration, but has his points.

Still I followed my doctor’s advice and opted to stay in bed, wearing diapers, and vomiting the finest ginger ale from crystal glasses that money can buy – $1.79 per 2-liter bottle, imported from Canada.

Out of boredom one eve, I lay watching CNN political coverage. I was already sick, so the dynamics of the 2016 political race technically couldn’t make me any sicker. Governor John Kasich told the story of confiding in former governor Arnold Schwarzenegger that he didn’t know how to handle personal attacks? Schwarzenegger replied with classic Arnold advice, “Enjoy the punishment.”

Schwarzenegger is no philosopher, but he was on to something. We have choices in our lives. We can be bitter and resentful, or find some sense of gratitude, no matter how bleak the circumstance. Yes, I was sick to a troubling level, but at least I was sipping – and vomiting – ginger ale from a fine crystal glass.

The Success of Being You

By Mark E. Smith

If you look back at the GOP primaries of 2016, an interesting dynamic occurred at one point. There were two candidates – Marco Rubio and Donald Trump – with very different dispositions. Rubio was historically one of a positive message, while Trump was much more aggressive. And, both personalities had their place, per voters. Some were drawn to Rubio’s personality, while others were drawn to Trump’s.

Going into the Florida primary, the state was arguably up for grabs. It was Rubio’s home state, giving a candidate typically an advantage, but Trump, a known businessman in Florida, had very strong poll numbers.

However, the week of the primary, a lot changed. While Trump stayed with his aggressive messaging, Rubio made an abrupt change with his. To supporters’ dismay, Rubio went from his typical messaging to very aggressive, Trump-like messaging. And, it contributed to costing Rubio the primary.

See, voters wanted the Marco Rubio they’d always known, not a candidate who suddenly engaged in Trump-like aggressive rhetoric. By all accounts, Rubio becoming someone he wasn’t proved a catastrophic mistake.

Of course, there were a lot of other dynamics – some going back years – that cost Rubio Florida, but by most political observers’ accounts, his trying to be someone he wasn’t in the final week was the tipping point for Rubio’s loss.

The whole situation reminds me of our personal lives, how miserably we fail when we try to be someone we’re not – and worse yet, the toll it takes on us.

Outwardly, we can seem ridiculous in trying to be someone we’re not. A buddy of mine is one of the kindest, most sincere guys you’ll ever meet – the kind of gentleman many women would fall for in an instant. But, he has it in his head that he has to be a “cool player” when it comes to meeting the ladies, transforming into a cologne-drenched show-off who’s… well… ridiculous. The female friends in our circle have told him the simple truth: being yourself attracts others, not trying to be a studly caricature.

When we’re outwardly trying to be someone we’re not, we mostly risk embarrassment – or not getting dates in my buddy’s case! However, when we’re trying to be someone we’re not on the inside, it’s painful at best, self-defeating at worst. When I began dating my wife, I put my best foot forward, but I also vowed to myself – and ultimately her – that I wasn’t going to hold any aspect of myself back. If she fell in love with me, great. But, if any aspect of who I am chased her away, it would be my loss, but at least I was honest in the process. Nowadays, when we’re in the kitchen and I’m admittedly letting my twisted sense of humor fly, sometimes to her dismay, I have the ultimate defense, “You knew who you were marrying!”

Imagine, though – or maybe you’re there now – how painful it is not to be able to fully express yourself out of fear of rejection by those you love. Think about what it’s like to be in a family dynamic or relationship where you don’t feel safe expressing who you truly are. We know clinically that when we keep aspects of our identity bottled up, rates of depression, low self-esteem, substance abuse, and even suicide all skyrocket. Not being ourselves can literally be dangerous. Marco Rubio lost an election; but, Tyler Clementi lost his life when he jumped off of the George Washington bridge due to the shame he felt from being outed as gay.

None of this need be – and it’s a two way street. We must have the courage to just be ourselves, and we likewise must create an interpersonal dynamic where we welcome others to be themselves. In living such an open life, just think of how easy, comfortable and fulfilling it all becomes, where you can just be you. A Chinese proverb puts it best: Tension is who you think you should be. Relaxation is who you are….

That Man – Spoken Word Video

Transcript:

That man. That man. No Sam I am, but I am a minority, rolling with authority, living life proudly as who I am – because, man, I am that man.

No, I’m not a misfit, but a paradigm shift, where when the world says I can’t, and I say screw you, Captain Sulu – because I can. Man, I am that man.

Like a two-dollar bill oddity disband, I can thrive and jive – on the dance floor, had a boombox back in ’84 – and the band plays on and on and on like the wheels rolling on my chair, wind blowing in hair. Because, man, I am that man.

There’s no price of admission – disability isn’t a curse or condition – it’s just the way it is, say it like it is, live it as it is – screw those with ignorance, where what some call a hairdo is really just friz. Because, man, I’m that man.

Bold and determined, bulldozing like a tank named Sherman, I am a minority, and I’ll use my authority to make the world stand on end – screw you, I refuse to pretend who I am, because I’m proud to be me, all that you see – shout it, cerebral palsy – because, man, I am that man.

Why So Angry?

By Mark E. Smith

Terry wasn’t just mad. She was the angriest individual I’ve ever dealt with.

“What!” she exclaimed every time she answered the phone. Then after trying to argue with me over this or that, she’d hang up on me, only to then call back even madder. Terry would work herself up something fierce.

“Terry, you have to have faith that some of us truly care,” I’d try to explain to her regarding the industry I work in, the one she was furious at. “We’re all truly trying to help you.”

My words were most often overshadowed by her simultaneous yelling, but I was always sincere with her, no less.

Now, it would be easy to assume that there were emotional or mental health issues going on with Terry. But, it was clear there wasn’t – she was just angry, the angriest person I’d ever dealt with.

To a point, I felt for Terry. I mean, can you imagine going through life so bitter and resentful that it consumes you? There’s no question that she saw life as her against a rotten world. That’s an agonizing state to live in.

However, what’s puzzling to me about such angry people is why they give anger so much control over them? After all, it’s not like bad things haven’t happened to the rest of us. I know I have my scars. Yet we’re not consumed by it. Yes, at some point events are going to make us angry. But, we have the power to let it go. When someone darts in front of you in the Walmart parking lot and takes “your” spot, there’s a choice to be made: get out and threaten the person’s life out of anger, or smile and move on to find another spot. Anger isn’t our only option.

While I’ve always been a happy, optimistic person, I haven’t always been free of harboring anger, which is why maybe I empathized with Terry. In my 20s, I harbored tremendous anger at my father, in particular. It wasn’t that he only walked out on our family when I was little, but that by phone he’d pop up from time to time and make promises he wouldn’t keep or say hurtful things as drunks do. That builds a resentment and anger when you’re carrying that inside you while growing up. By my 20s, I was boiling over with anger toward him. At one point I reached out to him – admittedly looking for a capacity that I wanted him to have, Just say you’re sorry, Dad, and make things right – and his ultimate lack of response made me even angrier.

However, after harboring anger toward him for years, I realized he wasn’t the one hurting me – I was hurting myself. By my 30s I had so much good in my life, why let a guy who gave me no thought, drinking himself to death in a trailer in the mountains thousands of miles away, induce three decades of anger in me? The situation was the situation, no harm was being done to me anymore, so why not let it go?

So, I did. I was me, he was him, and the two no longer needed to effect each other. Before his death, I went 10 years without speaking to my father. I made the choice to let it all go – any anger, any resentment – and it worked. My life was genuinely happy, and I wished him no harm. It was a weight lifted off of my heart.

I learned a lot in that process, that while there are places and times for anger, it’s not healthy to hold on to it, and it’s certainly not healthy to let it interfere with that which is good in our lives. Some think holding on to anger is a sign of their strength. However, I learned that holding on to anger is an ultimate weakness that… well… simply holds us back.

The Je Ne Sais Quoi to it All

By Mark E. Smith

There’s an ultimate je ne sais quoi to it all. It’s the tipping point where your skin fits – perfectly. It’s that inexplicable eloquence as you glide through life defying any preconceived notions of who you should be, all because you just are who you are, not a facade or a mirage, but true from the inside, out. Your core, anchored stronger than concrete, even an 8.0 on the Richter scale can’t shake you. As Nina Simone put it, “I’ll tell you what freedom is to me – no fear.” And, I’ll add that in everything you do, you don’t need to worry about any of it. Man, Woman, brothers and sisters – the je ne sais quoi of us all – just be. You.

Video:

Full-Court Throw

By Mark E. Smith

Imagine your basketball team is tied at the ending of a game, seconds from the final buzzer. You’re standing at the opposite end of the court, and the ball comes to you. What do you do with it?

Most players dribble, hold or pass the ball as the buzzer times out. After all, what can be accomplished at the buzzer, an entire court away from the basket?

My answer every time in life is to take a leap of faith in our talent, luck and what’s meant to be, and throw the ball as high and hard as we can across the entire court, toward the basket – because there’s a chance it will go in. When we have nothing to lose and everything to gain, go for the longshot every time.

I was writing an article a few years ago on pediatric wheelchair use, and I called the mother of a little girl in Southern California for an interview. We’d met a year or so earlier at an event I attended in L.A. on business, and we were linked through Facebook.

When I called her for the interview, I only had one thing on my mind – the interview. However, she was so engaging and wonderful to talk with. We ended up speaking the next eve, then the next, then the next. I quickly realized this woman was amazing, having it all: outer beauty, humor, intellect, compassion, you name it.

But, by all accounts, she was out of my league, though. If anyone objectively looked at the reality of the situation, I was at the wrong end of the basketball court to have any chance of making a basket. I was a single dad with cerebral palsy living in rural Pennsylvania. Why would a gorgeous high-end optician and artist living in San Diego even entertain me as a potential love interest?

However, as I fell for her, I turned to the one trait that’s always got me to new heights in my life: I went for the seemingly impossible longshot. I put my heart out there with nothing to lose and everything to gain. You might say I threw the longest basket in history – from Pennsylvania to California – and it miraculously swooshed the net. Yet, while making a full-court basket only lasts for one game, my now wife and our marriage is for a lifetime.

Life is going to put us at the end of the court from time to time. When we’re blessed, a ball comes our way. And, when the ball comes to us, we can pass or we can trust in ourselves and fate, throwing the ball as high and hard as we can toward the basket. No, it won’t go in every time – it hasn’t for me. But, when it does, it changes our lives forever.

From Dirt to Gold

By Mark E. Smith

A gracious colleague noted that I’m very skilled in business at seeing the positives and negatives in situations, and then pragmatically steering both toward the positive.

I replied, “That’s not a business skill, that’s a life skill that I’ve learned from disability experience, where if I didn’t know how to work with adversity, I wouldn’t be sitting here.”

In 1993, when Britain’s James Dyson introduced his first vacuum, it had a clear dust-collection canister of great controversy. Vacuums had always had bags, and the vacuum industry all said no one would want to see the dirt they vacuumed up in a clear canister. It was a totally valid point, proven by market research. Dyson had two choices: he could avoid the potential market controversy by enclosing the canister or he could see it as a counter-intuitive selling feature.

In among the most brilliant moves in business history, Dyson saw the controversial clear canister not as a detriment, but as an advantage. He wasn’t deterred by the market research, but embraced it proving his vacuum was unique. He used the clear canister to show consumers how his vacuum’s cyclonic action picked up more dirt than other vacuums – and consumers were mesmerized by it. People loved seeing how much gunk they vacuumed up! Within 18 months, it was the best-selling vacuum in the U.K., and today, virtually all vacuums have a clear canister.

So often when we face obstacles, we’re taught to work around them. However, working around obstacles rarely results in our greatest successes. Rather, working with obstacles is where success comes in. If you can succeed by addressing obstacles head on – like showing dirt in a vacuum canister instead of hiding it – that’s where ultimate success is found.

Many years ago, based on my disability, I couldn’t button buttons, so it was suggested that I have all of my clothing buttons replaced with Velcro. Velcro would work, except for one aspect – it wasn’t truly overcoming the obstacle, as I still couldn’t button buttons. I used thick, stiff wire and put a loop on one end, and discovered that by pushing it through a button hole, looping on to a button and pulling it back through, I could button buttons (other such tools are now sold). As a result, I could button any button. By addressing buttoning head-on, I solved it rather than avoiding it. Velcro was no solution; finding a way to button buttons was!

What I’ve learned is that life gives us obstacles no matter our circumstance, and we have the choice to use them as a deterrent or an opportunity. Maybe it’s based on my disability experience, business skill or smart-alecky tenacity, but when life presents me with obstacles, as it does all of us, I try my hardest to turn that canister of dirt into a pot of gold – obstacles into advantages, that is!