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By Mark E. Smith

If you ask my colleagues what I’m most known for in our interactions, most will tell you, asking questions.

It’s true. Most of the time I leave my office, it’s to go ask someone a question. No, not ordinary questions, but usually ones that make us both think, further question, and explore a topic – and ideally find innovative solutions. The result is that we both not only learn, but we often discover insights into improving our company and its products and services in some way. What I’ve learned is that great ideas rarely just happen; rather, they begin with a single question – the whys, hows and what-ifs?

For me, having lifelong cerebral palsy has taught me a lot – invaluable lessons that I’ve grown to recognize outweigh the intrinsic challenges. And, among the greatest lessons has been to never accept any presented limitation, but to question it, the whys, hows and what-ifs that move me beyond it. The fact is, in order to succeed with disability – and in all of life! – you have to be a master problem solver, and it all begins by questioning what is in order to get to what can be. No one needs to be a rocket scientist or super hero to overcome seemingly insurmountable obstacles. One merely needs to question a seeming status quo until an action-based solution is found.

I work in the power wheelchair industry, and over the past nine years, multiple Medicare funding cuts have impacted mobility access for those most in need. At this writing, another cut is waiting in the wings, and so a petition was started by a small group in our industry, where 100,000 signatures were needed within 30 days to have the White House consider the issue – a possible stop to the cuts. Unfortunately, the petition failed, with less than 30,000 signatures.

As a result, I’ve been hearing mumblings from some that the failed petition just proves that those with disabilities don’t care what happens to mobility funding.

What I haven’t heard is anyone ask a vital question: why aren’t those with disabilities more inclined toward advocacy? If you want 100,000 signatures, the answer to that question is key.

So, I’ve been exploring that question – why aren’t those with disabilities self-advocating to a successful level? – and that single question leads to profound causations and solutions. See, statistics tell the real story:

Only 7% of those with disabilities own their own home, compared to 69% of the general population. Why? Because the median household income of those with disabilities is half of that of the general population, and those with disabilities are three times more likely to live in poverty. Why? Because those with disabilities are 1/2 as likely to have completed high school, and only 1/3 as likely to have a bachelor’s degree, as those without disabilities.

When we follow those series of questions, it becomes evident that those among us with disabilities aren’t involved in advocacy and the political process because we’re among the poorest, least educated, and ultimately disenfranchised groups. Yet, the questions also reveal to me a solution:

If we want to have a culture of solidified disability advocates – and more importantly, socio-economic equality – we need to skip petitions for now and address the root causes. We literally need to focus on programs that help high school students with disabilities transition from high school to college, then college to the workforce. Once you have a population succeeding, not just surviving, then you can have a galvanized constituency.

Now, I’ve just taken you on a wild ride where a single question led to profound issues and vital solutions. But, that’s the eloquence of asking questions – you never end up where you started. In our relationships, in our careers, in our hearts, if you want to grow in any way, start with a question. It’s not My relationship is struggling; it’s Why is my relationship struggling? It’s not I’m dissatisfied with my career; it’s What would I love to do? It’s not I can’t do it; it’s What if I try this? We need to have the courage to ask direct questions that all but force us to act.

Indeed, questions are the sparks that don’t just ignite areas of our lives, but possess the power to change them.

Comments
  1. You bring up some good questions. Once I decided I had a disability 🙂 (Transverse Myelitis) I ended up with a Master’s in Social Work and learned about advocating. Then I started working with kids with disabilities. So, there is a program through the Department of Labor called High School/High Tech that not only teaches kids how to advocate for themselves and others but also provides little things like encouraging kids to explore careers, go on to college instead of getting a “special diploma,” little things that make a big difference. Not surprisingly the school district(s) hate it. And, they have right to. There are so many kids that don’t know how smart they are or what accommodations they are entitled to, etc. In addition to the schools there are the parents that rely on those social security checks or are simply over protective. I wish I were still running a program in my area I loved it that much but when the restroom became un-accessible due to a worsening of my disability, my age (60’s) and the non-profit didn’t meet the requirements of a non-profit it was time for me to go. Someone else did pick it up and hopefully is doing better with it.

    Thanks for letting me get that out of system! And, for letting me ask a question about my w/c!

  2. I have cerebral palsy and i have learned that although i have two associate degrees in it administration, as soon as i roll into an interview i might as well grab my resume turn around and roll right back out the door as i through my resume in the garbage can on the way out. As my “wives” father puts it, the wheelchair turns me in to the elephant in the room. Unfortunately, i have not yet learned how to defeat this attitude yet.

    It is the fault of employers who do not think outside the box that causes a majority of disabled people to live at levels of poverty. Of those employers that do think outside the box, few of them see any reason to pay a disabled person anymore then minimum wage and in my experience some attempt to pay on a 2 to 1 ratio meaning that a disabled person makes half the income of a non-disabled employer based on the reasoning that it takes us twice as long to get the same work completed.

    In all reality, disabled people are put behind the 8-ball from the beginning…..

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