By Mark E. Smith
I was recently in Boston, working a consumer trade show for disability-related products, including my company’s power chairs. If you’ve never been to Boston, it’s a stunning city – from the architecture to the cobblestone streets to the harbor – and I found myself in Boston at an amazing spot: the intersection of Purpose and Hope.
No, the intersection of Purpose and Hope isn’t a literal street corner in Boston, but it can be found in any city, and in any of our lives. For me, in Boston, it was found in my meeting a seven-year-old boy with cerebral palsy.
He reminded me a lot of… well… me at that age. He was a little guy, squirming all over the place in a manual wheelchair due to spasms and tone, symptoms of cerebral palsy. And, the reason why his family was at the show was because he needs a power chair to keep up with his siblings and peers – read that, to just be a kid.
We had our top-of-the-line power chair there in a pediatric seat size, and as I soon realized, uncannily as if made to fit him exactly. To address his involuntary body movements, I had our reps unbolt lap belts from other units, and we got him seated, strapped in and stable. And, like he’d been in a power chair his whole life – or, more aptly, a NASCAR driver – off he went!
I looked at his parents’ faces, their eyes, knowing how bittersweet these moments can be. On the one hand, a parent wants his or her child to have all of the independence in the world. Yet, no parent wants his or her child to have a lifelong disability. A child going into an advanced mobility device can be a parent’s emotional tug-of-war.
However, his parents understood the liberation he was gaining, and their expressed emotion was joy as he roared around an empty part of the convention hall.
“He’s going to be a little terror,” his mother said with a huge grin. “…From the playground to chasing his brothers on their dirt bikes.”
For me, I was blessed in that moment in living my purpose as one who’s found so much emotional reward in my career of serving others who are on the path I, too, have traveled. And, the family expressed so much hope toward the quality of life a power chair will bring to their son. All of this is the breathtaking beauty of the intersection of Purpose and Hope.
Where’s that intersection in your life right now? Sometimes we bring our purpose to the corner, and sometimes we come needing hope. I’ve been on both sides of the corner. Regardless, when we simply have the initiative and courage to place ourselves at the intersection of Purpose and Hope, all lives involved are elevated.
Wonderful esseay, Mark. If I had been less confined these days, I would have loved to meet you in person since I just live a 30 minute drive south of Boston. Glad you had such a rewarding time at the Abilities Expo.
Hi Mark, I wanted to go and see everything this expo was offering. I had previous plans and was out of state. I hope that it will come back again next year. Your story was wonderful and I can close my eyes and just see the story as if I was right there. I know my time will be here sooner then I want to be in a wheelchair full time and plan on investigating all my options. Thank you for your hope and inspiration.