self-acceptance – Page 8 – PowerchairDiaries

The Real American Dream

By Mark E. Smith

We often hear of the American Dream, but what does that really mean? In my home, it means a lot – because we’re living it.

This past week, I was in Atlanta, working with the Georgia Association of Medical Equipment Services, advocating at the Capitol and its Legislature for sustained mobility funding and disability-related services.

Before I left, my daughter and I sat at our kitchen table, and laid out our 2013 schedules, finances, and priorities. As a family – even though it’s just the two of us – we must be on the same page, as a team, pursuing my goals, her goals, and most importantly, our goals as a family building a legacy.

At just turning 16, my daughter is on her high school’s honor role, and on an Ivy-League track toward college, leaning heavily toward an ultimate doctorate in psychology. She plays and holds a seat not just in the school band, but regional orchestra, too, and is next auditioning for the state level in March. She’s a member of the National Thespian Society, where she acts, as well as serves as Secretary for her troop, and she’s a gallery-shown photographer. This summer, she’s attending George Mason University, where she was nominated as among the top 250 youth leaders in the country, and she’s also volunteering as a counselor at a muscular dystrophy summer camp. Yes, the kid is freakin’ awesome, nailing life at 16!

My career continues in full swing, where I have more corporate, advocacy, writing, and speaking projects lined up than in the history of my career, and what I’ve accomplished in just the first month of the year makes my head spin. Again, I was in Atlanta last week – recently back from Detroit! – now I have a radio interview, magazine columns (both in print and in process), a MDA Muscle Walk fundraiser, which I’m helping coordinate, an on-going book project, engagements in Nashville, and Los Angeles, and a full-time corporate job, message board, and weekly blog. And, that only gets me to mid March! (Then it’s Capitol Hill time, Abilities Expos… you get the idea….)

Yet, as a family, my daughter and I not only have to annually budget time, but also finances. We take money management very seriously in our home, where it’s not just about wealth-building and security, but “stewardship.” We believe that what we’re blesses with isn’t truly ours, but that we manage it for a greater good. We live totally debt free, put necessity before want, share with others, and give as much as we can to charity. We don’t live with a scarcity mindset, where we hoard for ourselves; rather, we live an abundant mindset, where there’s enough for us to really enjoy life and not worry, but we have the ability to give generously, as we believe giving to others is the absolute most fun that one can have with money (and, it’s the reason why we’re “stewards” of income – that is, to ultimately do good with it for others, as opposed to seeing it as ours to keep).

But, here’s what struck me about our 2013 family schedules, finances, and priorities meeting: We’re living the American Dream. In two generations – mine, now my daughter’s – we’ve changed our family tree beyond what many would deem possible. The number of firsts for us is astounding. Although a non-traditional family of just the two of us – there’s no mother figure in our family photos – we personify the American Dream.

See, it’s easy to look at me in a suit and tie traveling the country, speaking to audiences, or read my magazine columns, or know of my corporate career, or see me sunning on my boat or jetting off to Vegas, and say, Sure, Mark, life is easy for you when you and your daughter have money and opportunity….

However, the fact is, I was born into less than nothing, with the four generations before me living in abject poverty, all addicts, most serving prison time, none with an education, most just to steal and harm whoever they could. As I open some of my speaking engagements, On the day I was born, my grandfather was in prison, a lifelong criminal; my grandmother was a heroin-addicted prostitute; my father was an alcoholic, drinking in a bar at noon; and, as I was born on that day, I wasn’t breathing….

And, my family tree got worse from there. My grandmother called my mother on the phone and shot herself in the head, committing suicide. My grandfather died of a heroin overdose after endless years of prison time. Both my parents were Skid Row alcoholics, dead by the time I was 40. And, it all made sense, going back for generations on both sides of my family.

So, how did my daughter and I end up here today? Well, there’s been a lot of hurt, pain, struggle, and success in-between; but for me, it all started with getting myself in and out of a bathtub at age 11, where I simply learned that with unyielding tenacity and vision, my potentials could extend as far as I wished. I couldn’t just change the direction of my family tree, I could grow my own. …And, I did.

I was the first one ever to graduate high school in four generations. I was the first to go through college. I was the first to never serve jail time. I was the first to have a career. I was the first to own and invest. I was the first to not be an addict of any sort. I was the first to not do what those before me and around me had done, but to live by a radically different moral and ethical compass. I was the first to live the American Dream.

Yet, the climb has never been linear. Many of the ghosts of my heritage have chased me at times. At 17, I awoke in intensive care after my own failed suicide attempt. I got myself horribly in debt in my 20s. And, I have yet to sustain a life-long romantic relationship. Yet, every time I’ve fallen down, I’ve used second chances, which we all have, to make things right. I immediately got into counseling at 17; I worked my way out of debt in my early 30s; and, at this writing, I’m currently in counseling, striving to take accountability for a string of ended relationships, and get this whole love life thing right. Indeed, the beauty of the American Dream is it gives each of us the chance to change the directions of our lives at any time and redefine who we are. Again, we can get knocked down and fall down, but we have the chance and the choice to get up stronger every time. And, I’ve never passed on that opportunity.

And, while my daughter’s life hasn’t been a piece of cake, either – her mother ultimately unable to break free of her past and demons, to the point where she hasn’t been in my daughter’s life – my daughter has taken the torch of the American Dream, and ran with it. What we’ve both learned is that life isn’t what you’ve been born into; rather, it’s what you make of it, and despite hardships and hurt, you can move through it all, day by day, hurdle by hurdle, to success that you’ve earned by simply striving to do right – that’s living the American Dream.

Attitude of Gratitude

By Mark E. Smith

I want to talk to you about being our own brain surgeons, rewiring our thought processes from the negative to the positive. You don’t need a medical degree to do this; just a willingness to choose to see one over the other.

See, it’s proven that our brains are naturally more attracted to negative thoughts than positive thoughts. You might say that negativity has a larger imprint than positivity in the physicality of our brains. Clinically, it’s called the “Negativity Bias.”

The way the negativity bias works is that when, for example, twenty people tell you how great your hair looks, and one person says that he or she doesn’t like it, that one put-down will stick with you every time you look in the mirror. And, we know from psychology that those constantly exposed to abusive relationships – constant put-downs – they lose the ability altogether to recognize what’s positive and healthy, drawn toward negativity like magnets.

I don’t know where my wires got crossed, but I’m just the opposite – positivity has a much bigger imprint on my brain than negativity. I call it my attitude of gratitude, where I just feel blessed no matter what. And, I probably shouldn’t have such a positive outlook, based on the cumulative adversity and negativity that I’ve faced in my life. I mean, the list is endless. However, what’s remarkable is that I’m not the only one. I’m forever impressed by my peer, Nick Vujicic. Nick was born without arms or legs, among the severest of disabilities you’ll ever see. And, in school, the bullying and social stigmas never ended, where Nick, in his own words, was the local freak show. Yet, while such a horrendous childhood would blacken most people’s hearts, it actually opened Nick’s. Today, at age 30, he’s the most sought-after inspirational speaker in the world, has a New York Times best-selling book, and a wife with their first child on the way. And, although Nick can’t drive, he owns his beloved classic hot rod car. No arms, no legs, but with his attitude of gratitude, Nick is literally Unstoppable (the title of his best-seller, by the way), among the most positive, loving people you’ll ever meet.

Nick proves a profound lesson to all of us: How to truly live. Why let the negativity of your life – or even physiology of the brain – dictate our potentials when we can be our own brain surgeons, so to speak, and dictate positive life paths over negative ones?

Speaking for myself, there’s little room in my head or heart for anything but joy and gratitude. I know that for every negative emotion, there’s a more powerful, productive one. Why argue when you can hug; why question when you can understand; why be bitter when you can be thankful; why condemn when you can uplift; why be offensive when you can be gracious? Why not just love and be loved? It’s the greatest, easiest, most-fulfilling way to live. No one or nothing can do you wrong because you only know what’s right. How powerful is that!

I encourage you to take a look at your life, define the negativity from the positivity, and steer your life toward the positives. See the sunshine through the clouds, and focus on that. It may be scary at first. It may require you to make major changes in your life. It may even require you to be a bit humble and apologize toward those you’ve wronged through being trapped in negativity. However, that’s the beauty of the “Negativity Bias” – it’s just a bias, and biases can be changed. You are a brain surgeon, skilled enough to switch your thinking – make that, your life! – from the negative to the positive. Shift from a negative to a positive bias, and open your heart – I guarantee that your life will head in directions that you never dreamed.

I Am Who I Am

By Mark E. Smith

I’m heading back to Detroit at this writing. It seems that city, which has far more going for it than most realize, can’t get enough of me. This trip, I’m giving the keynote address at a healthcare leadership conference for doctors and hospital executives. My theme is,”The Quality of a Practitioner’s Character Dictates the Quality of Care.”

See, I know a little bit about the subject – or, more aptly, I’ve known the impact of a practitioner’s character on patients’ care since right before my birth.

Twenty minutes or so before my birth, my mother was given an epidural, a routine anesthesia to lessen the pain of child birth. However, an incorrect amount was given by the anesthesiologist – a massive overdose – resulting in my mother not breathing, with me quickly born not breathing, as well. To make matters worse, the delivery room staff forgot to have an infant respirator in the room or even on that hospital floor, and when they did get one, it had a hole in it, not properly maintained. I was manually resuscitated by the delivery doctor, minutes of brain-damaging loss of oxygen having passed.

It later came out in court that, in an attempt to bolster his income, the anesthesiologist was illegally moonlighting, working revolving shifts unbeknownst to anyone between a military hospital and the public hospital where I was born. By his own admission, he had been working 90 hours, with virtually no sleep, when he administered my mother’s overdose of anesthesia.

Now, it is true that there was a snowball effect. The overdose of the anesthesia caused me to stop breathing, then the lack of an infant respirator prolonged my loss of appropriate oxygen, and then the final broken infant respirator was simply a topping on the cake, you might say. And, it all culminated in my severe cerebral palsy.

Again, I know a little bit about how the quality of a practitioner’s character dictates the quality of care.

Now, there are a lot of potentially different outcomes looking back. If the anesthesiologist hadn’t given my mother the overdose, everyone agreed that I wouldn’t have cerebral palsy. However, what if a nurse had ensured that an infant respirator was in the room – would that slight attention to detail have prevented my condition? Or, what if someone ensured that the broken respirator was repaired – would that slight attention to detail have lessened my condition?

The answers in my case are, no one will ever know. What happened, happened. And, truly, it’s of no concern to me. I’m proud of what I’ve made of my life, where it’s about potentials, not limitation, where it’s about passion for what I have, not longing for what I might have lost. I am who I am because of who I am – and I would never change that. I would never change me.

Yet, for others to come, my experience does teach a valuable lesson: The quality of a practitioner’s character does dictate the quality of care.

Now, if you’ll excuse me, my publicist and I have a plane to catch. Cerebral palsy, no matter – I’m rock-starring this gig!

Bigger, Faster, Stronger

By Mark E. Smith

Alight, I admit it, I’m one of those sentimental fools who gets fired up about the New Year. I’m not about New Year’s resolutions, though. I’m about continuing courses, plotting new courses, and forever getting better at this thing called life. And, I’m stoked for 2013, where my motto is Bigger, Faster, Stronger – that is, in all aspects of my life.

I’m hitting the ground running (not literally, of course, as curing myself of cerebral palsy is far too lofty of a goal!), pumped with a new book project. Books in progress are a bit like creating a new product, where you keep them a bit under wraps till you’re closer to launch (it’s a competitive edge thing). However, it’s about mobility and people – and that’s cool stuff! I’m looking forward to getting out on the road, having some fascinating conversations with mobility and disability icons, and undoubtedly learning more about all of our potentials in life to do what others might not dare in the face of adversity.

My role as father continues as my most cherished. On the one hand, my daughter and I are closer than ever, in a great emotional groove. On the other hand, my daughter is growing up fast, demonstrating such amazing potentials, a dad’s true pride. She’s on the honor role; is in the school and district bands; is a member of the National Thespian Society, and acts; she has her photography currently on display in an art gallery; has an Eagle Scout boyfriend; and, is in driver’s education (first car, March!). So, I’m learning more and more that parenting isn’t about letting go of the rope, but giving a bit more slack – and I’m so proud of not just how she’s handling her independence, but also who she’s becoming as a young woman: compassionate, humble, loving, and sincere. It’s extraordinary to watch as a parent, and my life would be merely a blank page without her. I’ve had my adversities in life, but the single blessing of my daughter trumps them all toward my never-ending gratitude.

Of course, I continue working on myself physically, emotionally, mentally, and spiritually. As iconic wheelchair racer and amazing spirit, Candace Cable, recently flattered me with, “Yes, Mark, I admire your ripped-ness,” I continue working out like a maniac in my gym. I’ll be 42 in March, and I’m physically in better shape than ever. I guess it’s one thing to have cerebral palsy, and another to be middle-age. But, to be both and be ripped… well… that’s an impressive feat, if I say so myself (and I do!). I can’t wait to see how much farther I can push myself in the coming year. Seeing your body sculpted at this age is admittedly fun, especially when few expect it from one with my disability level. But, it’s really the challenge that inspires me – the actual work it takes to literally become bigger, faster, stronger! I met ‘80s icon, Rick Springfield, recently, who’s 63 and he’s totally ripped, so if Rick can look that awesome at 22 years my senior, I better keep pushing bigger, faster, stronger!

Also toward the physical – and admittedly superficial! – I’m growing my hair out for the first time in 15 years. However, I have no intention of just growing my hair out. No, I want the craziest rock-star hair that styling products can make. I want the kind of hair that it takes an hour to make it look that messy. I want the woman in my life to run her fingers through my hair and think it’s the hottest thing ever. I want to come off stage, and have someone say, “That was a great talk, but your hair is freakin’ awesome!” I want to make Russell Brand look sane!

Toward the emotional and spiritual, 2013 turns a major page in my life. I’ve written a lot about my struggling with feeling worthy of love – and, Lord knows I’ve struggled! But, I’m done struggling. I’ve realized that those in my past incapable of truly loving me don’t define my value. I love fully, I strive in my relationships, and I give all that I have to those I love – and they now give back to me. I’m done with this not feeling worthy of love bull. I’m worthy because I’m me, and you’re worthy because you are you. I’m not longing for love or needing love – I am love, and that’s enough. Put simply, I have ridiculous amounts of love to give, and my heart is more receptive than ever – let the love in, baby! And, what’s not to love about a ripped bod and forthcoming rock-star hair?

And, in the area of love, I’m looking forward to catching up with so many great friends in 2013. I believe that the quality of our friends reflects the quality of our character and, ultimately, the quality of our life. I’ve been blessed with developing among the wisest, sincerest friendships that I could fathom. They’re scattered around the country, and my time with each of them throughout the year always teaches me a bit more about myself and life – I never leave a visit or conversation without growing somehow in the process. So, get the guest rooms ready because I’m showing up in 2013 – it’s a priority of mine! (And, when I say, “showing up,” it means I’m like Publishers Clearing House – I’ll just appear on your porch with balloons one morning.)

As for spirituality, I’m totally excited to once again be spending my birthday, the first week of March, in Las Vegas – you know, Sin City. …Wait, that doesn’t sound spiritual at all! Actually, Dave Ramsey is doing a personal growth seminar there that week, titled, “Living a Legacy.” Dave isn’t everyone’s gig, as he mixes the biblical with the practical to convey ethical leadership skills in business, family, and life, but he sure nails his subject matter as a brilliant speaker. So, I’m excited to close the first quarter of 2013 on such an inspired adventure – and further define my legacy in a bigger, faster, stronger kind of way.

Of course, bigger, faster, stronger applies to the mobility industry, as well. We not only have bill H.R. 4378 gaining momentum – which strives to gain complex rehab technology its own funding class and removes the in-home-use-only funding rule – but CELA is a bigger educational event this year, both great causes that I’m focused on (look for my column in the February issue of HME News). On the product side, you will be seeing innovation in a lot of power mobility areas – can’t say what, but cool stuff is in the pipeline.

I could go on and on because I’m so pumped about 2013, but my point is this: I have no New Year’s resolution. But, what I can promise you is that for 2013, I will be bigger, faster, stronger in all parts of my life – namely because I never stop loving, learning, and giving. If we just follow those three paths, we can’t help but become bigger, faster, stronger! …But, rock-star hair takes a little more time.

The Power of Choice

By Mark E. Smith

I recently had the pleasure of speaking to a very large group of diverse professionals – executives, CEOs, managers, and small-business owners.

In a rapport-building exercise, I asked the group to be open and trusting, and by a show of hands, how many of them felt that 2012 was a great year for them? Two of us – yes, I was one of them – raised our hands.

I then asked how many people had a terrible year in 2012, and it was a sea of hands in the air, with seemingly everyone raising their hands.

Then, I asked how many people had an in-between year in 2012, and three people raised their hands.

There was a fairly round number of attendees at the conference, of diverse backgrounds and occupations, and what I realized was that, mathematically, 95% of them raised their hands that they’d had a terrible year.

I went on to do my talk about “recognizing the treasure within each of us,” and then we had a question-and-answer session. And, as is my ultimate blessing and privilege, the program went fantastic, where from the host to attendee surveys, I was noted as the highlight of the conference.

Yet, as my publicist and good friend, Haley, and I got in my van, starting it to leave, I asked, “How is it that 95% of those participants had a terrible year?” It really did trouble me, where I wanted to go back and learn each person’s story. I mean, I know all of us go through tough – sometimes, hellish – times in our lives, so there undoubtedly is more pain in the lives of those around us than we realize. I can only imagine how many people in that room experienced a painful relationship, illness in the family, financial troubles, depression, and on and on during 2012. Yet, to have 95% of a large audience tell me they’ve had a terrible year truly saddened me.

Interestingly, just prior to that conference, I’d read that 63% of Americans feel that the best is past, that only worst times are to come – a record high of discouragement in our country today. Again, I know that these are tough times for many, but the lack of hope and optimism is downright alarming.

All of this reminded me of the hellish times in my life – from the petty like riding my power wheelchair to work in horrible snow storms, to the more serious like finding my mother with her wrists slit on my 10th birthday, to my sister having cancer, to being in painful relationships, and so on – but I don’t recall having what I would label an outright bad year, not to mention a bad week (a bad day, here or there, but that’s to be expected). There’s always some blessing – yes, even during hellish times.

So, what was it that made 2012 a great year for me, as opposed to 95% of my peers that day? Gratitude and personal growth. Sure, I can make the year sound terrible, too: As a full-time single father with cerebral palsy, with the economy in the dumps, and my sister having another cancer scare, the year had its challenges. Yet, while I acknowledged each adversity, I chose not to let them define my year. Instead, I had a great year. My daughter’s doing extremely well, there’s a special lady in my life, I still live totally debt free, my sister is healthy, and I maintain rewarding work. No, my life isn’t easy on the daily basis, but in the larger picture, all is blessed. Why focus on the trying times of 2012, when there’s so much to be thankful for?

And, that’s where all of this ties together. While we can’t control many circumstances that bring adversities into our lives, we always retain the ultimate ability to address them: Are you going to choose to focus on defeat or victory, the challenges or the successes, the curses or blessings? You have the power to choose the perspectives in your life – we all do.

And, it was Haley who raised a great point that day. Maybe the 95% of people at that conference who declared having a terrible year were only thinking of the bad, not the blessings? Despite some adversities, surely there were great moments in all of their lives in 2012 – they were just choosing to focus on the negative, albeit even if just being put on the spot with my question.

For the New Year, I hope more of us employ the conscious power of choice – that is, choosing to focus on the positives. The fact is, focusing on the negative stalls us, while focusing on the positive empowers us. When we’re negative, we dwell; when we’re positive, we accomplish. …And, we know which gets results and inspires us. The power of choice isn’t rocket science.

We’re all going to face adversities in 2013, and of course we should acknowledge and address them. I’m not saying pretend that adversities don’t exist – they do, and the only way to resolve them is to address them. However, rather than hyper focusing on only the negatives in a situation – or, forbid, our whole lives – let us focus on the positives. I’ve never encountered an adversity in my life where there ultimately wasn’t opportunity or blessing. It hasn’t always been immediately evident or timely, but truly, even the worst times of pain have brought my life to higher levels of opportunity and blessing.

So, how do we shift toward the positive powers of choice? …By consciously looking at the positives, and moving our perspectives in that direction – it’s that simple.

Maybe you’re entering the New Year with a relationship on the rocks because you’re both dwelling on the negatives. Get on the same page as a couple, remind each other why you fell in love in the first place, and choose as a team to focus on those positives – don’t settle for an end when you can reignite the beginning. Choose to keep learning, growing, and loving.

Just because the economy is down, doesn’t mean you have to be down – choose to focus on the positives and opportunity – and look for them where you wouldn’t expect. A college buddy of mine was an executive at the country’s largest newspaper chain, but was laid off a year ago based on changing times. He’s been out of work ever since, but has volunteered with Habitat for Humanity, filling his time of adversities with efforts that bless others, having now helped build dozens of homes for those in need. Nevertheless, his actions weren’t always so selfless. His ultimate dream for years was simply to own a Ferrari, loving the car when he finally bought it in 2008. He called me not too long ago and said, “Mark, I have great news – I sold my Ferrari.”

I was puzzled because he loved that car, and it was a dream realized, so how was selling it great news?

“That car was a double blessing in disguise,” he told me. “When I bought it, it was my most prized possession, and when I sold it, it was a true blessing – that car just paid my daughter’s college tuition when I couldn’t have afforded it.”

My friend didn’t look at dreams lost by having to sell his beloved car based on job loss, but he saw dreams realized by using it to pay his daughter’s tuition. He chose to look at the positive in what those who were more superficial may have seen as a disappointment.

Of course, we’re not islands, and those around us have a huge impact on how we see the world and feel. Part of the power of positive choice is choosing who’s in our lives and how we deal with them. In my life, I’ve made big strides over the years to avoid those who bring negativity and drama into my life. I want reciprocating relationships of inspiration – and I’m striving to be that person, as well. If we’re around lousy people, with bleak outlooks, who are emotional and psychological vacuums, we’re going to get sucked into what Dave Ramsey calls the “language of losers,” people who are so negative that they just pull us down. Instead, we should surround ourselves with champions, those who ooze positivity and are our peers in positive outlooks. People who pump us up – who are excited about life – are who we should choose to have around us, just as we should do for others.

With 2013 right around the corner, I still have no idea what it has in store for me. I’m betting that there will be adversity – I don’t know in what form, or how severe, but it will be there. Nevertheless, I’m also betting that I’ll get through it with strides, as I always have, knowing that adversity is always lined with opportunity and blessing. Join me in choosing the power of positivity to make 2013 among our best years ever, regardless of what it brings.

It Happens for Us

By Mark E. Smith

I’m always intrigued when I hear people say, “Life isn’t fair.” It intrigues me because it’s simply never proves true in the long run. See, I’ve learned that while in the short term, bad occurrences – disability, divorce, job loss, addiction, you name it – can seem like they happen to us, they really ultimately happen for us – unexpected blessings that only come from adversity.

I remember in the mid 1990s, just such an example, where a terrible situation that initially happened to me, ultimately proved to happen for me, bettering my quality of life. I was in college and working, not making a lot of money, but enough to own my little 1,100-square-foot home in a borderline part of town. I felt blessed to own the home, but it was in no way ideal – it wasn’t fully accessible, and it needed a lot of expensive repairs. I couldn’t afford to replace the leaking roof, let alone renovate my bathroom to make it fully accessible.

To make matters worse, a big storm hit us, and although I lived on a hill, my side patio flooded, water pouring through the patio doors, filling my entire house with 6” of water. I remember the feeling of helplessness as I watched the water flow throughout my entire house within moments, destroying what little I had.

Soon, the water receded, and I was left with a horrendous muddy, soggy mess. The wall-to-wall carpeting was destroyed; the wall furnaces were destroyed; the sheet rock wicked moisture, needing dramatic repair; and, everything that was on the floor was soaked, from my wheelchair’s battery charger to my couch. I wasn’t sure how I could ever afford to repair my home, not having flood insurance.

However, while neighbors tore out my water-logged carpet and piled all of my destroyed goods on the lawn – my having no way to replace any of it – a FEMA claims inspector came along within a day or two. He assessed my property, and wrote me a several-thousand-dollar check on the spot. Within a week, I received another FEMA check, and with the help of my city’s building department, I was able to get a reputable contractor to start repairing my home.

But, here’s what’s amazing. As the city’s building inspector checked on my home’s progress one day, he noted my accessibility needs. And, within days, he had grant money for me to not only make my bathroom accessible, but to replace the roof and make other improvements. My home was ultimately in far better shape after the flood than before.

My point is, while the flood initially happened to me, it ultimately happened for me. A terrible occurrence was the catalyst for ultimate blessing.

If you truly look at the floods in your life – that is, the adversities that happen to you – you’ll clearly see that they are really happening for you in the end – winter always ushers in spring. I know, you may be thinking, Mark, bad thing after bad thing just keeps happening to me, there is nothing happening for me.

You need to look a little closer, that’s all – and you’ll see how turmoil always leads to triumph. Closed doors always become open doors. My dysfunctional upbringing didn’t happen to me, it happened for me, making me constantly strive to be a better father to my daughter. My ended marriage didn’t happen to me, it happened for me, placing me on a much healthier emotional path that’s brought greater levels of love, laughter, and contentment into my life. My cerebral palsy didn’t happen to me, it happened for me, instilling countless lessons within me as to the extraordinary potentials within all of us.

Really, we should each possess a bring-it-on! attitude, where we know that life plays its roles in magnificently mysterious ways, where vying always leads to victory, where turbulent times are merely life’s good graces getting ready to come our way. The next adversity that you face, remind yourself that nothing happens to you, but for you, where closed doors open, and a flood of prosperity and success are coming your way. Have faith and patience, and you’ll be amazed at how the tides in your life turn.

That Thing Called Integrity

By Mark E. Smith

I did an interview recently, and both the interviewer and my public relations manager both expressed that if any of the questions were too personal, I should feel free to not answer them. And, so I tried to figure out what would be too personal for me to publicly address?

And, I couldn’t come up with what would be too personal for me to publicly answer, especially because the interview was for a mobility industry publication. I mean, it’s not like they’d ever ask if I’ve had sex in my wheelchair, right? But, if they did, I’d pull a Bill Clinton, and ask for a clarification of terms – and then reply with a resounding, Yes, and then share every sordid detail of each encounter that I could squeeze in before my publicist wisely censored me. …So, I was 20, and in the all-girls dorm at Santa Clara University one night, dating this really hot Psych major….

But, alas, to me at least, the questions were strikingly normal – just questions about growing up with my disability. And, then it hit me: I suppose some people do view speaking of their disabilities as too personal to discuss in public. But, not me, and as I got into the interview questions, I had no qualms about answering them, to an as-honestly-personal level as I could.

See, I know that everyone has differing levels of comfort and privacy. But, if you’re going to put yourself out there, don’t hold back. And, I believe that if someone – or, a readership – is candid enough to ask you a question, you owe it to them and yourself to give a completely candid answer, even when a lump develops in your throat and you have to say what you’re going to say in one breath or the tears will start flowing. After all, if you’re not going to expose yourself completely – your heart and soul, fear and shame – you’re lying to everyone, including yourself. It all comes down to a greatly underestimated trait called integrity.

So, I worked my way through the questions with what I learned about Gandhi. He never planned a speech. What he said, felt, and did were so congruent that he spoke solely from intuition and heart. To each question, I just strove to give an authentic answer.

The interview went great, and not thinking much about it, I left the transcript on my kitchen table. My daughter and sister were hanging out that eve, and began reading through it, par for the course, till they got to one specific question and answer:

What do you know now that you wish you knew then?
That I am worthy of love. I mean, I still struggle with it, but not nearly as much as I did in my teens and twenties. My father, till the day he died, expressed shame toward my disability, and my mother always blamed my disability for their divorce (which occurred when I was a toddler). My mother was also a life-long substance abuser and experienced mental illness, so I took the brunt of that chaos, much of which she blamed on my having a disability, as well. So, when you add that into the normal teen equation of wanting to fit in – but not fitting in due to disability – it was hard for me to look at myself in the mirror at, say, 17. Based on a lot of work on personal growth, and raising my daughter, I’ve come a long way toward truly feeling worthy of love – but, admittedly, I still struggle with it at times.

“Wow, that’s really brave of you to publicly share,” my sister said.

“It’s not brave at all,” I said. “It’s just being honest.”

Where Love Grows

By Mark E. Smith

The Hayes stop by my company once per year, either on their way to Maine in May, or on their way back to North Carolina in September. Snowbirds, they are.

I have no idea exactly how long they’ve been married, but I’d guess 45 years, based their age, as well as having three grown grandchildren. And, they’re madly in love – and it’s contagious to everyone around them.

And, so, it’s no surprise that when Mrs. Hayes was diagnosed with multiple sclerosis years ago, Mr. Hayes took an early retirement, and dedicated himself not just to his wife’s eventual full-time care, but also toward doing an astounding job of continuing with their dream retirement, going between North Carolina and Maine.

I’ve been in a unique position in that I’ve seen snapshots of Mrs. Hayes’ progression, yearly glimpses into her loss of function, to the point this September that she can only move her head a bit. Yet, what would seem like bittersweet annual visits are actually uplifting, a true lesson in life – and love.

See, despite the progression of multiple sclerosis, the Hayes simply seem happier every time I visit with them – projecting a contentment, zest, and love for life we should all be blessed with. And, it’s intrigued me to the point that I’ve striven to define what they intrinsically know that many others don’t, how they simply get happier the tougher life gets?

What I’ve determined is a profound truth: They continually inspire each other.

Think about how many couples we know with everything to be thankful for – health and wealth – but all they do is bicker and disrespect each other. There’s no admiration or inspiration seen in each other – just two unappreciative people, living a devalued life.

However, the Hayes are different. They know that the other is putting 100% into life, the marriage, and everyone around them – and are so inspired by each other that they each give more and more. The result is a cumulative effect, where it’s like inspiration squared, admiration compounded, love volleyed back and forth that just grows and grows and grows.

And, so there are two questions that the Hayes teach us to ask in our own relationships: Does our partner inspire us, and are we inspiring our partner?

If the answer is, yes, then we are doing everything right, living an ultimately-fulfilled life of truly reciprocating love – a love that just grows and grows and grows.

However, if we’re in a relationship where we’re not mutually inspired with our partners, then we need to make changes for the better – starting with ourselves, allowing ourselves to inspire and love fully.

Yet, the ultimate lesson that the Hayes teach us is that we don’t have a limited reservoir for inspiration and love. Rather, we have the unique capacity for boundless inspiration, where love doesn’t merely exist, but can constantly grow.

Raising Expectations

By Mark E. Smith

At this writing, my daughter is in her first week of the 10th grade. It’s unquestionably the most pivotal point in her academic career – and, make no mistake, the expectations are set high.

See, the 10th grade is where colleges begin looking at grade-point averages, curriculum, and extra-curricular activities toward college admissions – and, again, make no mistake, their expectations are set high, where they want the best of the best.

However, it’s really not the universities’ expectations that matter; rather, it’s my daughter’s expectations that matter. My daughter’s self-expectations will determine how well her school year – and ultimately all of high school – goes toward college admissions. So, wisely, she has set her expectations high, too. Her grade-point average can’t be below 3.8 and, ideally, should be a perfect 4.0 or higher (honors classes can increase it). Her expectations aren’t to cruise through high school with no forethought, but to expect nothing less than to remain at the top of her class.

Yet, here’s what’s interesting about my daughter: She’s not an intellectual genius or such – just a regular 15-year-old who happens to know that whatever expectations she sets create her success.

It’s truly a lesson for all of us: What we expect is typically what we achieve. Set low expectations for yourself, and you’ll receive dismal results. Set high expectations for yourself and you’ll achieve amazing results. My great-grandmother always said, “It’s just as easy to love a good man as it is a bad man, so why not love a good man?” Really, she was hitting at the heart of self-expectation – what you pursue is what you get, so pursue the best.

In the disability realm, I can tell you for a fact that self-expectations play the single largest role toward successful living. I’ve known those with the severest of disabilities, and those with minor disabilities – and while physicality should dictate that those with more severe disabilities should have a tougher plight, that those with minor disabilities should be more successful, it simply doesn’t prove true. We see some with minor disabilities wallowing in life, while those with sever disabilities achieve amazing success. It becomes evident, then, that the single key factor between success and failure is self-expectation. If one with a minor disability believes one’s life is over, it is – low self-expectation achieve low results. However, if one with high self-expectations believes one can accomplish anything, one can – again, high self-expectations accomplish high results.

The key, then, is for all of us to look at each aspect of our lives, and ask ourselves the vital question of, Am I setting my expectations high enough? I mean, Am I pursuing the career I’m capable of; am I pursuing the relationships I’m worth of; am I being the best parent that I can be? Most importantly, Am I setting my expectations high enough in all aspects of my life to achieve the high results I’m worthy of and that those around me deserve?

Of course, increasing our self-expectations can be scary at first. If we expect little, then there’s no risk of disappointment, right? Going back to my daughter, if she had low expectations toward her grades, a D wouldn’t matter. However, because her expectations are to achieve a 3.8 grade-point average or better, a D would be devastating. But, setting low expectations to avoid feelings of failure is flawed logic. Sure, if you have low expectations, you’re less likely to be disappointed by any failure; yet, that’s only because you’re setting yourself up for failure! Setting high self-expectations may seem like a risk for failure – and it sometimes can be in the short term – but in the long term, it’s the only true guarantee for success. Again, what we expect plays a key role in what we achieve, so simply raising our self-expectations – and putting effort toward it, of course – will bring success. Put simply, there’s nothing but risk in low expectations, as we will fail; however, there’s virtually no risk in high expectations because it ensures success at some level.

Let us each raise our self-expectations in all aspects of our lives, and live to those standards. Why? Because we’re each worth it.

Living as Josh Does

By Mark E. Smith

Twenty-one-year-old Josh has been an increasingly remarkable spirit in my life since I met him four years ago. I’ve never known a young person with such wisdom and insight, making our recent conversation par for the course based on Josh’s amazing character.

Josh was diagnosed in his adolescence with a very progressive form of muscular dystrophy. However, unlike many others with his prognosis, the disease didn’t progress as rapidly as usual – that is until approximately two years ago. In fact, when I first met Josh, he was still walking, using a mobility scooter for longer distances. Yet, in the last two years, the disease caught up with him, dramatically diminishing muscle tone. I’ve seen Josh go from drinking from a soda can normally, to struggling to lift it with two hands; and, I’ve seen Josh go from walking to not being able to transfer himself from a power wheelchair.

Make no mistake, the physical realities of Josh’s condition are disheartening. But, the lessons learned and the personal growth that’s resulted from his challenges have been inspiring, teaching us both invaluable lessons along the way.

Josh and I have traveled a lot together, working trade shows, summer camps, and advocacy events. We’ve lobbied the halls of Capitol Hill, and rock-starred it in Los Angeles. However, the heart of our friendship has been formed from our weekly phone calls, where every Thursday, Josh and I talk on the phone, tossing around subjects ranging from relationships to dealing with disability to music. My role is supposed to be that of mentor, but Josh has so much wisdom and is so reflective of the struggles and victories that we all face, that I often think I learn more from him than he does from me.

One of Josh’s recent victories – and a process that we talked about for many months – was his driving independently via an accessible van. After a year and a $120,000 in technology, Josh now independently drives a van with ultra-high-end hand controls that are closer to resembling those that control an airplane more so than a car. And, for his first long-distance drive this summer, he drove 3-1/2 hours to vacation at a lake where he vacationed often as a child.

When we spoke the week after his vacation, he explained to me that the trip was ultimately a realization for him: Most of the activities that he could do as a teen – boating, fishing, and so on – were no longer feasible or easily accomplished, that he realized in very real terms the progression of his condition.

I, of course, asked how he felt about his sudden realization of the progression of his condition? And, his answer was a lesson for all of us. Josh explained that what realizing how much his condition has progressed made him intimately understand is the importance of making the most of today because we don’t know what tomorrow brings.

I couldn’t have been prouder of Josh’s insight because it demonstrated a perspective that we should all live by: Being bitter or regretful of our pasts – or of what’s seemingly been lost – is pointless. Valuing our present – no matter the circumstances – is truly what it’s about.

Moving well beyond disability, think about how many of us dwell on past relationships, childhood trauma, lost jobs – you name it – where rather than accepting, healing, and evolving to live fully in the present, we just get stuck in the past. Josh could have likewise gotten caught in the past, returning home bitter as to what his condition has done. Instead, he recognized the past as just that – gone, done, over – and was even more inspired to appreciate whatever abilities that he has today. It’s kind of like rather than dwelling on how bad your past relationship was, you focus on how great the current one is – that’s how you move forward.

And, if there’s a single lesson that Josh teaches us, it’s to live in the present, simply appreciating all that we have today.