Living with disability – Page 15

Bigger, Faster, Stronger

By Mark E. Smith

Alight, I admit it, I’m one of those sentimental fools who gets fired up about the New Year. I’m not about New Year’s resolutions, though. I’m about continuing courses, plotting new courses, and forever getting better at this thing called life. And, I’m stoked for 2013, where my motto is Bigger, Faster, Stronger – that is, in all aspects of my life.

I’m hitting the ground running (not literally, of course, as curing myself of cerebral palsy is far too lofty of a goal!), pumped with a new book project. Books in progress are a bit like creating a new product, where you keep them a bit under wraps till you’re closer to launch (it’s a competitive edge thing). However, it’s about mobility and people – and that’s cool stuff! I’m looking forward to getting out on the road, having some fascinating conversations with mobility and disability icons, and undoubtedly learning more about all of our potentials in life to do what others might not dare in the face of adversity.

My role as father continues as my most cherished. On the one hand, my daughter and I are closer than ever, in a great emotional groove. On the other hand, my daughter is growing up fast, demonstrating such amazing potentials, a dad’s true pride. She’s on the honor role; is in the school and district bands; is a member of the National Thespian Society, and acts; she has her photography currently on display in an art gallery; has an Eagle Scout boyfriend; and, is in driver’s education (first car, March!). So, I’m learning more and more that parenting isn’t about letting go of the rope, but giving a bit more slack – and I’m so proud of not just how she’s handling her independence, but also who she’s becoming as a young woman: compassionate, humble, loving, and sincere. It’s extraordinary to watch as a parent, and my life would be merely a blank page without her. I’ve had my adversities in life, but the single blessing of my daughter trumps them all toward my never-ending gratitude.

Of course, I continue working on myself physically, emotionally, mentally, and spiritually. As iconic wheelchair racer and amazing spirit, Candace Cable, recently flattered me with, “Yes, Mark, I admire your ripped-ness,” I continue working out like a maniac in my gym. I’ll be 42 in March, and I’m physically in better shape than ever. I guess it’s one thing to have cerebral palsy, and another to be middle-age. But, to be both and be ripped… well… that’s an impressive feat, if I say so myself (and I do!). I can’t wait to see how much farther I can push myself in the coming year. Seeing your body sculpted at this age is admittedly fun, especially when few expect it from one with my disability level. But, it’s really the challenge that inspires me – the actual work it takes to literally become bigger, faster, stronger! I met ‘80s icon, Rick Springfield, recently, who’s 63 and he’s totally ripped, so if Rick can look that awesome at 22 years my senior, I better keep pushing bigger, faster, stronger!

Also toward the physical – and admittedly superficial! – I’m growing my hair out for the first time in 15 years. However, I have no intention of just growing my hair out. No, I want the craziest rock-star hair that styling products can make. I want the kind of hair that it takes an hour to make it look that messy. I want the woman in my life to run her fingers through my hair and think it’s the hottest thing ever. I want to come off stage, and have someone say, “That was a great talk, but your hair is freakin’ awesome!” I want to make Russell Brand look sane!

Toward the emotional and spiritual, 2013 turns a major page in my life. I’ve written a lot about my struggling with feeling worthy of love – and, Lord knows I’ve struggled! But, I’m done struggling. I’ve realized that those in my past incapable of truly loving me don’t define my value. I love fully, I strive in my relationships, and I give all that I have to those I love – and they now give back to me. I’m done with this not feeling worthy of love bull. I’m worthy because I’m me, and you’re worthy because you are you. I’m not longing for love or needing love – I am love, and that’s enough. Put simply, I have ridiculous amounts of love to give, and my heart is more receptive than ever – let the love in, baby! And, what’s not to love about a ripped bod and forthcoming rock-star hair?

And, in the area of love, I’m looking forward to catching up with so many great friends in 2013. I believe that the quality of our friends reflects the quality of our character and, ultimately, the quality of our life. I’ve been blessed with developing among the wisest, sincerest friendships that I could fathom. They’re scattered around the country, and my time with each of them throughout the year always teaches me a bit more about myself and life – I never leave a visit or conversation without growing somehow in the process. So, get the guest rooms ready because I’m showing up in 2013 – it’s a priority of mine! (And, when I say, “showing up,” it means I’m like Publishers Clearing House – I’ll just appear on your porch with balloons one morning.)

As for spirituality, I’m totally excited to once again be spending my birthday, the first week of March, in Las Vegas – you know, Sin City. …Wait, that doesn’t sound spiritual at all! Actually, Dave Ramsey is doing a personal growth seminar there that week, titled, “Living a Legacy.” Dave isn’t everyone’s gig, as he mixes the biblical with the practical to convey ethical leadership skills in business, family, and life, but he sure nails his subject matter as a brilliant speaker. So, I’m excited to close the first quarter of 2013 on such an inspired adventure – and further define my legacy in a bigger, faster, stronger kind of way.

Of course, bigger, faster, stronger applies to the mobility industry, as well. We not only have bill H.R. 4378 gaining momentum – which strives to gain complex rehab technology its own funding class and removes the in-home-use-only funding rule – but CELA is a bigger educational event this year, both great causes that I’m focused on (look for my column in the February issue of HME News). On the product side, you will be seeing innovation in a lot of power mobility areas – can’t say what, but cool stuff is in the pipeline.

I could go on and on because I’m so pumped about 2013, but my point is this: I have no New Year’s resolution. But, what I can promise you is that for 2013, I will be bigger, faster, stronger in all parts of my life – namely because I never stop loving, learning, and giving. If we just follow those three paths, we can’t help but become bigger, faster, stronger! …But, rock-star hair takes a little more time.

The Power of Choice

By Mark E. Smith

I recently had the pleasure of speaking to a very large group of diverse professionals – executives, CEOs, managers, and small-business owners.

In a rapport-building exercise, I asked the group to be open and trusting, and by a show of hands, how many of them felt that 2012 was a great year for them? Two of us – yes, I was one of them – raised our hands.

I then asked how many people had a terrible year in 2012, and it was a sea of hands in the air, with seemingly everyone raising their hands.

Then, I asked how many people had an in-between year in 2012, and three people raised their hands.

There was a fairly round number of attendees at the conference, of diverse backgrounds and occupations, and what I realized was that, mathematically, 95% of them raised their hands that they’d had a terrible year.

I went on to do my talk about “recognizing the treasure within each of us,” and then we had a question-and-answer session. And, as is my ultimate blessing and privilege, the program went fantastic, where from the host to attendee surveys, I was noted as the highlight of the conference.

Yet, as my publicist and good friend, Haley, and I got in my van, starting it to leave, I asked, “How is it that 95% of those participants had a terrible year?” It really did trouble me, where I wanted to go back and learn each person’s story. I mean, I know all of us go through tough – sometimes, hellish – times in our lives, so there undoubtedly is more pain in the lives of those around us than we realize. I can only imagine how many people in that room experienced a painful relationship, illness in the family, financial troubles, depression, and on and on during 2012. Yet, to have 95% of a large audience tell me they’ve had a terrible year truly saddened me.

Interestingly, just prior to that conference, I’d read that 63% of Americans feel that the best is past, that only worst times are to come – a record high of discouragement in our country today. Again, I know that these are tough times for many, but the lack of hope and optimism is downright alarming.

All of this reminded me of the hellish times in my life – from the petty like riding my power wheelchair to work in horrible snow storms, to the more serious like finding my mother with her wrists slit on my 10th birthday, to my sister having cancer, to being in painful relationships, and so on – but I don’t recall having what I would label an outright bad year, not to mention a bad week (a bad day, here or there, but that’s to be expected). There’s always some blessing – yes, even during hellish times.

So, what was it that made 2012 a great year for me, as opposed to 95% of my peers that day? Gratitude and personal growth. Sure, I can make the year sound terrible, too: As a full-time single father with cerebral palsy, with the economy in the dumps, and my sister having another cancer scare, the year had its challenges. Yet, while I acknowledged each adversity, I chose not to let them define my year. Instead, I had a great year. My daughter’s doing extremely well, there’s a special lady in my life, I still live totally debt free, my sister is healthy, and I maintain rewarding work. No, my life isn’t easy on the daily basis, but in the larger picture, all is blessed. Why focus on the trying times of 2012, when there’s so much to be thankful for?

And, that’s where all of this ties together. While we can’t control many circumstances that bring adversities into our lives, we always retain the ultimate ability to address them: Are you going to choose to focus on defeat or victory, the challenges or the successes, the curses or blessings? You have the power to choose the perspectives in your life – we all do.

And, it was Haley who raised a great point that day. Maybe the 95% of people at that conference who declared having a terrible year were only thinking of the bad, not the blessings? Despite some adversities, surely there were great moments in all of their lives in 2012 – they were just choosing to focus on the negative, albeit even if just being put on the spot with my question.

For the New Year, I hope more of us employ the conscious power of choice – that is, choosing to focus on the positives. The fact is, focusing on the negative stalls us, while focusing on the positive empowers us. When we’re negative, we dwell; when we’re positive, we accomplish. …And, we know which gets results and inspires us. The power of choice isn’t rocket science.

We’re all going to face adversities in 2013, and of course we should acknowledge and address them. I’m not saying pretend that adversities don’t exist – they do, and the only way to resolve them is to address them. However, rather than hyper focusing on only the negatives in a situation – or, forbid, our whole lives – let us focus on the positives. I’ve never encountered an adversity in my life where there ultimately wasn’t opportunity or blessing. It hasn’t always been immediately evident or timely, but truly, even the worst times of pain have brought my life to higher levels of opportunity and blessing.

So, how do we shift toward the positive powers of choice? …By consciously looking at the positives, and moving our perspectives in that direction – it’s that simple.

Maybe you’re entering the New Year with a relationship on the rocks because you’re both dwelling on the negatives. Get on the same page as a couple, remind each other why you fell in love in the first place, and choose as a team to focus on those positives – don’t settle for an end when you can reignite the beginning. Choose to keep learning, growing, and loving.

Just because the economy is down, doesn’t mean you have to be down – choose to focus on the positives and opportunity – and look for them where you wouldn’t expect. A college buddy of mine was an executive at the country’s largest newspaper chain, but was laid off a year ago based on changing times. He’s been out of work ever since, but has volunteered with Habitat for Humanity, filling his time of adversities with efforts that bless others, having now helped build dozens of homes for those in need. Nevertheless, his actions weren’t always so selfless. His ultimate dream for years was simply to own a Ferrari, loving the car when he finally bought it in 2008. He called me not too long ago and said, “Mark, I have great news – I sold my Ferrari.”

I was puzzled because he loved that car, and it was a dream realized, so how was selling it great news?

“That car was a double blessing in disguise,” he told me. “When I bought it, it was my most prized possession, and when I sold it, it was a true blessing – that car just paid my daughter’s college tuition when I couldn’t have afforded it.”

My friend didn’t look at dreams lost by having to sell his beloved car based on job loss, but he saw dreams realized by using it to pay his daughter’s tuition. He chose to look at the positive in what those who were more superficial may have seen as a disappointment.

Of course, we’re not islands, and those around us have a huge impact on how we see the world and feel. Part of the power of positive choice is choosing who’s in our lives and how we deal with them. In my life, I’ve made big strides over the years to avoid those who bring negativity and drama into my life. I want reciprocating relationships of inspiration – and I’m striving to be that person, as well. If we’re around lousy people, with bleak outlooks, who are emotional and psychological vacuums, we’re going to get sucked into what Dave Ramsey calls the “language of losers,” people who are so negative that they just pull us down. Instead, we should surround ourselves with champions, those who ooze positivity and are our peers in positive outlooks. People who pump us up – who are excited about life – are who we should choose to have around us, just as we should do for others.

With 2013 right around the corner, I still have no idea what it has in store for me. I’m betting that there will be adversity – I don’t know in what form, or how severe, but it will be there. Nevertheless, I’m also betting that I’ll get through it with strides, as I always have, knowing that adversity is always lined with opportunity and blessing. Join me in choosing the power of positivity to make 2013 among our best years ever, regardless of what it brings.

Hill Holders for Life

hill

By Mark E. Smith

In the realm of manual wheelchair technology, there’s a mechanism commonly called a “hill holder.” As you push up a hill, the hill holder works as an automatic, one-direction brake – the wheelchair can’t roll backward, only forward, allowing ultimate progress pushing up the hill. In fact, even on the steepest of hills, you can push forward, let your hands off of the wheels, and the wheelchair stays right where you want it, guaranteeing constant progress.

I often think that we need hill holders in life – emotionally, mentally, financially, physically, spiritually. We need a mechanism that prevents backward slides on our momentum. You’ve heard the saying, Two steps forward, one step back… well… that’s our hill holders not working.

No, if we’re to learn, grow, and succeed, we need hill holders firmly in place, where we only go forward in life, not backward. Have you ever paid off your credit cards, only to use them again? Have you ever struggled with an addiction, only to start again? Have you ever vowed to stay out of unhealthy relationships, only to get in yet another one? Have you ever vowed to diet and workout, only to overindulge and go back to being a couch potato? In whole, have you ever tried to make positive changes, forward momentum in life, only to end up going backward, to old patterns? Most of us have, for any number of reasons – returning to negative comfort zones, being scared of progress, low self-esteem… self-sabotaging roots. I know, I’ve been there, and still find myself there at times!

But, that’s where real life hill holders come into play – when things get tough, they keep us from going backward, from losing momentum, from throwing away great progress in our life.

I met an acquaintance who had completely turned around his whole life. He went from divorced, broke, alcoholic, and spiritually bankrupt to having a soul mate, a great career, not drinking, and becoming a pastor – all in about six years. Now, six years is a long time, but to make such complete, radical changes over any period is impressive. When I asked him his secret to success, he said that it started with personal accountability – the ultimate hill holder – but then he went the extra step and only surrounded himself with people who brought out excellent in him (even if we’re not savvy enough to catch ourselves off of track, let’s at least surround ourselves with those who care enough to catch us).

My acquaintance is a great example of installing hill holders in our lives. We may be compelled to go backward toward that which is bad for us – it’s easier to roll back down the hill than to push up it! However, if we do that, our lives never improve, and we never succeed. Instead, hill holders keep our forward momentum, where despite being scared or self-sabotaging or lazy, accountability and our support network kicks in to bolster our progress.

Be brave enough to use hill holders in your life, and you”ll achieve greater vistas than you ever imagined.

Flipping Coins

By Mark E. Smith

They say that there are two sides to every coin – and that’s so true in life. The fact is that adversity happens to all of us, but so can success, often all in the same circumstance. Often turning a vying into a victory, you might say, comes down to simply flipping the coin to the other side. On a deeper level, it’s a principle that I call, Making that which seems against you, actually work for you. It’s about taking the bad tosses of life, and flipping the coin over so that they become blessings, successes, better than where you started.

A friend of mine loved her job, having worked it for 10 years, making close to $100,000 per year. She admired her co-workers, was immensely talented, and was loyal to her employer. She told me that she hoped to run the whole division she was in some day. She was inspired, accomplished, and on the fast track. So, imagine how devastated she was when she was abruptly let go, her job gone.

I worried about her tremendously, wondering where she would go, what she would do? To make matters more concerning, she was the bread-winner in her household, supporting two children and a mortgage. What good could possibly come out of that situation, one that countless Americans currently face? Indeed, it was a terrible toss of the coin, the losing side of life flipped up.

However, my friend did something amazing: She did what it took to turn the coin right-side-up. Within two weeks, she had a new job several states away, bold enough to make that move. And, after a year at that job, doing very well, she was hired at one of her old employer’s competitors for more money, in a more prestigious position. That which originally seemed to work against her, ultimately worked for her. She didn’t just come out of adversity, she came out on top.

Think about how many aspects of our lives that seem against us, actually work for us. An ended bad relationship leads to a healthy new one; a job loss leads to a better one; addiction-recovery leads to healthier living. The list goes on and on. However, the truth comes down to this: Just when you think life’s dealt you a blow with the bad side of a coin, remember that there’s always another side. Flip it over, and make that which seems against you, actually work for you.

I recently saw the movie, The Sessions, based on the true story of writer, Mark O’Brien. Struck with polio as a young boy, he spent his life completely paralyzed, most of the time living in an iron lung. Yet, he used among his only capabilities – the ability to move his head – to control a mouth stick, meticulously typing one letter at a time, ultimately publishing countless articles and poetry on subjects ranging from disability commentary to baseball to interviewing Dr. Stephen Hawking. O’Brien took among the toughest plights – imagine all that was against him – and made it work for him.

Life is going to give us all bad tosses of the coin. Heck, I sometimes think I’ve had so many bad tosses of coins that my adversities keep the Federal Reserve’s mint in business! Yet, I always know exactly what to do when bad tosses of the coin come my way: flip it over, making that which seems against me, actually work for me. I was raised by alcoholic-addicts, so I’ve lived a very sober life. Being a full-time single dad has made me a better dad, bring more joy to my life as a father than I could have ever imagined. Having cerebral palsy has allowed me among the most rewarding careers. I could have easily gone down terrible paths with each adversity in my life. However, before the coin even hits the ground, I’m usually snatching it mid-air, ensuring I’m righting it as quick as I can toward favor and blessing.

Bad tosses of the coin are going to come your way – that’s a fact. However, it’s up to you to leave it as-is, working against you, or strive to flip that coin over, making it work for you. I say, always strive to find the shiny side to any coin – read that, situation – as that’s the only one that will add value to your life, taking you to levels of success that others may not have foreseen.

Palm Tree in the Wind

By Mark E. Smith

Indeed, my friend, I continue working on this thing called life – physically, emotionally, mentally. I’ve concluded that it’s all a bit like exercise. From the physical to the emotional, if we do nothing, life is effortless. However, such a no-effort approach is also the worst thing for us – we don’t grow, nothing changes, nothing gets easier, things just stay the same or degrade. Yet, like physical exercise, when we put in the effort to change ourselves for the better, we grow and become healthier – and life gets better. It’s the nature of personal growth: It takes effort, but the more we do it, the easier it gets – more intuitive, more natural – and the healthier we get.

I just spoke at the University of Scranton, and a student asked where I got my resiliency as a child? I couldn’t give an absolute answer other than there was something intrinsic in me toward facing adversity. I know that in changing our lives for the better as adults, we need a conscious desire to improve ourselves, as well as an innate inner capacity to accomplish it. There’s often a catalyst for conscious change – and I’ll get to that more in a moment – but the innate part is more complex.

I recently learned about the resilience of palm trees. While all other trees topple in hurricane force winds, the palm bows for hours in horrendous storms, then simply uprights to normal. Oaks, pines, maples, you name it, all topple – but not the palm. I think all of us are born as palms – that is, having utmost resilience – but for some, the roots are eroded by others, where hellish upbringings can kill our capacities to grow beyond the scars that were left. But, fortunately, I wasn’t one of those people whose spirit was ever lost or destroyed. I’ve weathered my storms, but my roots – my capacities to learn, grow, and change – stayed intact.

For a lot of years, I relied on my innate capacities to change and grow, but it wasn’t until the passing of both my parents due to their troubled lives that I truly understood the power of combining innate strength with the conscious desire to change, to move beyond their negative examples and live a better life for myself. It’s one thing to survive and get by; but, it’s another to thrive and do well. I guess with my parents’ deaths, I was able to shake away a lot of shadows, and truly work on moving beyond the pain of my past. It may be a shame that their passing liberated me in ways – that’s not how parent-child relationships should work – but it did put so much of the dysfunction to rest. I guess those who aren’t there anymore can’t hurt us – but the memories still can – and moving beyond both has been my goal for several years now.

And, the newly-made memories are better these days, all of them. I added a fireplace to my master bedroom. No, it’s not a real one, but what they call “vent-free.” But it’s a beautiful mantel, with a realistic flame and logs, and heats the room with a toasty warmth and glow. I also picked out a thick, shag area rug that nicely frames my bed. It all cozies up my space, a tranquil one, where my daughter and I have nightly conversations about her life, my life, our life – life overall. She’s in driver’s education now, with her first formal gallery showing of her photography coming up, and a boyfriend who’s an Eagle Scout. So, there’s a lot to talk about around the fake fireplace and shag rug – warmth abound.

We recently went and saw The Perks of Being a Wallflower. It’s the movie adaptation from the 1990s novel by the same name. A central theme of the movie is, We accept the love we think we deserve, meaning that if we think we deserve little, then that’s what we’ll get, that we should all raise our expectations – in life and love. And, the movie was not lost on who we’re each striving to become, the wounds we’re each healing, the ever-rewarding effort that we’re each putting into loving, learning, and growing.

It’s said that if we don’t address the trauma of our pasts and heal, we statistically will relive it, making ourselves forever either a victim or a perpetrator – or both. If you were raised by an alcoholic, chances are that unless you make a conscious change, along with possessing the innate capacity to do so, you will marry an alcoholic, be an alcoholic, or, forbid, do both. This holds true for any trauma in our lives, where, again, if we don’t address it, we relive it – the only creature on Earth known by science that revictimizes itself. And, I’ve done it, now taking absolute accountability for choosing relationships where I simply found those who fit the mold of those I knew in my insanely dysfunctional upbringing – emotionally unavailable for any number of dysfunctional reasons. However, with my own value at stake – raising the bar on the health and love that I deserve, and breaking the cycle of dysfunction for the sake of my daughter – I continue working on myself, changing my own flawed programming, moving out of the shadows of my past and into the glow of my potential. And, like exercise, it’s been painful getting into shape, and it’s all just scary and confusing at times. But, I just keep working at it – the strength of a lone man just trying to do right.

And, so it’s around the fake fireplace and shag rug that I continue building an ever-inspired life of laughter, love, learning, and growth. Sure, it was once just my daughter and me in a house left both literally and figuratively empty by my ended marriage, repeated dysfunctional patterns from my childhood on. But, now there are new pictures on the walls, a fake fireplace, and shag rug that are just quirky enough to feel so right. Palm trees, my friend, do always find ways to right themselves – it just takes time.

It Happens for Us

By Mark E. Smith

I’m always intrigued when I hear people say, “Life isn’t fair.” It intrigues me because it’s simply never proves true in the long run. See, I’ve learned that while in the short term, bad occurrences – disability, divorce, job loss, addiction, you name it – can seem like they happen to us, they really ultimately happen for us – unexpected blessings that only come from adversity.

I remember in the mid 1990s, just such an example, where a terrible situation that initially happened to me, ultimately proved to happen for me, bettering my quality of life. I was in college and working, not making a lot of money, but enough to own my little 1,100-square-foot home in a borderline part of town. I felt blessed to own the home, but it was in no way ideal – it wasn’t fully accessible, and it needed a lot of expensive repairs. I couldn’t afford to replace the leaking roof, let alone renovate my bathroom to make it fully accessible.

To make matters worse, a big storm hit us, and although I lived on a hill, my side patio flooded, water pouring through the patio doors, filling my entire house with 6” of water. I remember the feeling of helplessness as I watched the water flow throughout my entire house within moments, destroying what little I had.

Soon, the water receded, and I was left with a horrendous muddy, soggy mess. The wall-to-wall carpeting was destroyed; the wall furnaces were destroyed; the sheet rock wicked moisture, needing dramatic repair; and, everything that was on the floor was soaked, from my wheelchair’s battery charger to my couch. I wasn’t sure how I could ever afford to repair my home, not having flood insurance.

However, while neighbors tore out my water-logged carpet and piled all of my destroyed goods on the lawn – my having no way to replace any of it – a FEMA claims inspector came along within a day or two. He assessed my property, and wrote me a several-thousand-dollar check on the spot. Within a week, I received another FEMA check, and with the help of my city’s building department, I was able to get a reputable contractor to start repairing my home.

But, here’s what’s amazing. As the city’s building inspector checked on my home’s progress one day, he noted my accessibility needs. And, within days, he had grant money for me to not only make my bathroom accessible, but to replace the roof and make other improvements. My home was ultimately in far better shape after the flood than before.

My point is, while the flood initially happened to me, it ultimately happened for me. A terrible occurrence was the catalyst for ultimate blessing.

If you truly look at the floods in your life – that is, the adversities that happen to you – you’ll clearly see that they are really happening for you in the end – winter always ushers in spring. I know, you may be thinking, Mark, bad thing after bad thing just keeps happening to me, there is nothing happening for me.

You need to look a little closer, that’s all – and you’ll see how turmoil always leads to triumph. Closed doors always become open doors. My dysfunctional upbringing didn’t happen to me, it happened for me, making me constantly strive to be a better father to my daughter. My ended marriage didn’t happen to me, it happened for me, placing me on a much healthier emotional path that’s brought greater levels of love, laughter, and contentment into my life. My cerebral palsy didn’t happen to me, it happened for me, instilling countless lessons within me as to the extraordinary potentials within all of us.

Really, we should each possess a bring-it-on! attitude, where we know that life plays its roles in magnificently mysterious ways, where vying always leads to victory, where turbulent times are merely life’s good graces getting ready to come our way. The next adversity that you face, remind yourself that nothing happens to you, but for you, where closed doors open, and a flood of prosperity and success are coming your way. Have faith and patience, and you’ll be amazed at how the tides in your life turn.

Play In Pain

By Mark E. Smith

At this writing, hurricane Sandy is bearing down on us, and it looks like I have to ride home in my power wheelchair in rain and 40mph winds. And, I’m totally fine with that – no big deal. Now, I have other options, but they seem illogical to me. I have over 400 hours of accumulated time off, so I could have stayed home, or even worked from home. Or, I could call someone to bring my van and pick me up. But, why would I do either of those? Schools are closed, and people are hunkering down with storm supplies, but a little discomfort – or, a lot – never persuaded me to stop from doing what’s best for me and those who count on me, like my going to work like any other day, regardless of a supposed looming hurricane.

We live in culture where too many people seem to resist “playing in pain,” sidelining themselves from the game of life, albeit due to emotional, physical, or mental challenges. It’s as if why try when you can just give up? There’s a storm brewing, so let’s cancel school. I’m sick, so I’m not going to work. My boyfriend broke up with me, so I’m going to sleep all weekend. I lost my job, so I’m just going to sit around the house….

No, just because bad things happen doesn’t mean that we throw in the towel, give up on ourselves, make excuses, or stop our lives. Rather, in times of adversity, we should pick up the pace. They make rain gear to weather storms, and when storms hit our own lives, you might say that rather than run and hide, we should don our rain gear – that is, our inner-strength – and head into the storm, head on. After all, weathering storms is how we grow and become stronger.

The next time you find yourself with the two options of adversity – to play in pain with pride, or seat yourself on the sidelines of life with pity – don your rain gear and head into the storm, with courage and tenacity. Choose to “play in pain,” and you will come out stronger.

The Disability-Technology Continuum

By Mark E. Smith

From my CEO to my life-long best friend, a conversation keeps popping up that’s quite fascinating. It’s what I’ve coined “The Disability-Technology Continuum.”

The disability-technology continuum, as I’ve defined it, is an extremely simple yet profound concept. It’s the fact that technology literally makes us less disabled – that is, it improves upon virtually every aspect of our lives, that when we have appropriate technology, our abilities and quality of life expand.

I can use the disability-technology continuum as a prime example in my own life toward how it works and its ultimate results. Imagine there’s a scale from 0 to 100. Zero is totally disabled, as in bed-ridden, and 100 is totally independent. Without a mobility device, I’m at 0 because, based on my disability, I’d be bed-ridden. However, if I have a manual wheelchair, my functionality increases to, say, 30 on the continuum. Yet, with a power chair, now I may be at, say, 60, and with an elevating seat added, I’m bumped up to 65. You get the idea: appropriate technology increases independence, lessening the impact of disability.

Of course, many aspects move one along the disability-technology continuum. Mobility equipment, computer technology, adaptive transportation, and accessible housing, to name a few, all play key roles in moving us from the bottom end of the continuum toward the upper end – and it’s near the upper end where aspects like education, employment, and community involvement skyrocket. And, as we move up the continuum, we don’t just win, everyone wins, as our independence benefits many, where we simply can contribute more toward society.

All of this, however, requires exactly that – societal support, where, culturally all understand the importance of supporting moving others up the disability-technology continuum. See, technology can only get those with disabilities so far. It’s societal support and acceptance that both allow and complete the disability-technology continuum. Technology can physically liberate those of us with severe disabilities, but, make no mistake, we need a society that fosters that process.

Where Love Grows

By Mark E. Smith

The Hayes stop by my company once per year, either on their way to Maine in May, or on their way back to North Carolina in September. Snowbirds, they are.

I have no idea exactly how long they’ve been married, but I’d guess 45 years, based their age, as well as having three grown grandchildren. And, they’re madly in love – and it’s contagious to everyone around them.

And, so, it’s no surprise that when Mrs. Hayes was diagnosed with multiple sclerosis years ago, Mr. Hayes took an early retirement, and dedicated himself not just to his wife’s eventual full-time care, but also toward doing an astounding job of continuing with their dream retirement, going between North Carolina and Maine.

I’ve been in a unique position in that I’ve seen snapshots of Mrs. Hayes’ progression, yearly glimpses into her loss of function, to the point this September that she can only move her head a bit. Yet, what would seem like bittersweet annual visits are actually uplifting, a true lesson in life – and love.

See, despite the progression of multiple sclerosis, the Hayes simply seem happier every time I visit with them – projecting a contentment, zest, and love for life we should all be blessed with. And, it’s intrigued me to the point that I’ve striven to define what they intrinsically know that many others don’t, how they simply get happier the tougher life gets?

What I’ve determined is a profound truth: They continually inspire each other.

Think about how many couples we know with everything to be thankful for – health and wealth – but all they do is bicker and disrespect each other. There’s no admiration or inspiration seen in each other – just two unappreciative people, living a devalued life.

However, the Hayes are different. They know that the other is putting 100% into life, the marriage, and everyone around them – and are so inspired by each other that they each give more and more. The result is a cumulative effect, where it’s like inspiration squared, admiration compounded, love volleyed back and forth that just grows and grows and grows.

And, so there are two questions that the Hayes teach us to ask in our own relationships: Does our partner inspire us, and are we inspiring our partner?

If the answer is, yes, then we are doing everything right, living an ultimately-fulfilled life of truly reciprocating love – a love that just grows and grows and grows.

However, if we’re in a relationship where we’re not mutually inspired with our partners, then we need to make changes for the better – starting with ourselves, allowing ourselves to inspire and love fully.

Yet, the ultimate lesson that the Hayes teach us is that we don’t have a limited reservoir for inspiration and love. Rather, we have the unique capacity for boundless inspiration, where love doesn’t merely exist, but can constantly grow.

Smashed-Up

By Mark E. Smith

For the third time, U.S. Airways luggage handlers have dropped my power chair from around eight feet in the air (off of the top of the conveyor belt near the cargo door). Fortunately, that particular power chair is like a Timex watch: After two years of use, travel, and being dropped from the conveyor belt three times, it takes a lickin’ and keeps on tickin’!

But, not without battle scars, of course. I mean, when a 300-something-pound power chair falls from eight feet onto the pavement, bad things happen. This time, the power chair landed with such a blow that it actually twisted – not bent, but twisted – some seriously-stout metal structures, destroying an armrest and back cane. Still, the power seating system and power base are fine, ready for more flights (and drops). And, because I’m part of my own power chair company, yes, I am a bit more fortunate than others because I can piece it back together, cover up the gashed areas with black paint, and be off to the next event in real time. Still, in the moment, I’m as stuck as anyone would be at the airport with a smashed-up power chair – not a good feeling or scene.

However, here’s what I really don’t understand: A bunch of people saw my power chair fall off of the conveyor belt – clearly smashed-up – and no one acknowledged it, pretending that it never happened. This time, someone parked it, tweaked as heck, at the gate counter (rather than bringing it to the plane door like they should), and the gate agent came down to the plane door, simply telling me that they couldn’t bring my chair down because it wasn’t working. Duh – it took an 8-foot tumble to the tarmac!

I really appreciate the hard work that the luggage handlers perform – it’s back-breaking, in weather extremes, for not a lot of pay. I also understand that they’re not trained to handle mobility devices, nor is the equipment that they use designed for loading and transporting a big, heavy object like a power chair. However, on a deeper level, how have the airlines created a culture of no responsibility? Call me naïve, but where are accident reports and such? How can a company’s employees and procedures damage customer property without any sort of personnel accountability? Sure, a damage claim can be filled, but that doesn’t resolve the systemic issue of zero accountability among employees – they literally can destroy your property, and no one cares. And, the slight cynic in me wonders if the airlines have determined that it’s more cost effective to just pay an occasional claim than to train personnel and create procedures?

A portion of my career involves flying, and the highlights of my life have been traveling with my teenage daughter the past few years. So, despite a bad track record, and undoubtedly more challenges to come, the rewards of air travel far outweigh the risks and consequences.

Yet, I’d still feel better if I could just fly somewhere without worrying if I’ll be mobile when I land?