humility – Page 24 – PowerchairDiaries

I Am Who I Am

By Mark E. Smith

I’m heading back to Detroit at this writing. It seems that city, which has far more going for it than most realize, can’t get enough of me. This trip, I’m giving the keynote address at a healthcare leadership conference for doctors and hospital executives. My theme is,”The Quality of a Practitioner’s Character Dictates the Quality of Care.”

See, I know a little bit about the subject – or, more aptly, I’ve known the impact of a practitioner’s character on patients’ care since right before my birth.

Twenty minutes or so before my birth, my mother was given an epidural, a routine anesthesia to lessen the pain of child birth. However, an incorrect amount was given by the anesthesiologist – a massive overdose – resulting in my mother not breathing, with me quickly born not breathing, as well. To make matters worse, the delivery room staff forgot to have an infant respirator in the room or even on that hospital floor, and when they did get one, it had a hole in it, not properly maintained. I was manually resuscitated by the delivery doctor, minutes of brain-damaging loss of oxygen having passed.

It later came out in court that, in an attempt to bolster his income, the anesthesiologist was illegally moonlighting, working revolving shifts unbeknownst to anyone between a military hospital and the public hospital where I was born. By his own admission, he had been working 90 hours, with virtually no sleep, when he administered my mother’s overdose of anesthesia.

Now, it is true that there was a snowball effect. The overdose of the anesthesia caused me to stop breathing, then the lack of an infant respirator prolonged my loss of appropriate oxygen, and then the final broken infant respirator was simply a topping on the cake, you might say. And, it all culminated in my severe cerebral palsy.

Again, I know a little bit about how the quality of a practitioner’s character dictates the quality of care.

Now, there are a lot of potentially different outcomes looking back. If the anesthesiologist hadn’t given my mother the overdose, everyone agreed that I wouldn’t have cerebral palsy. However, what if a nurse had ensured that an infant respirator was in the room – would that slight attention to detail have prevented my condition? Or, what if someone ensured that the broken respirator was repaired – would that slight attention to detail have lessened my condition?

The answers in my case are, no one will ever know. What happened, happened. And, truly, it’s of no concern to me. I’m proud of what I’ve made of my life, where it’s about potentials, not limitation, where it’s about passion for what I have, not longing for what I might have lost. I am who I am because of who I am – and I would never change that. I would never change me.

Yet, for others to come, my experience does teach a valuable lesson: The quality of a practitioner’s character does dictate the quality of care.

Now, if you’ll excuse me, my publicist and I have a plane to catch. Cerebral palsy, no matter – I’m rock-starring this gig!

Talk About Mistakes

Mistakes are lessons of wisdom. The past cannot be changed. The future is yet in your power. -Hugh White

By Mark E. Smith

Have you ever made a grievous mistake, one that you immediately regretted, one that you wished you never made, one that made you think less of yourself?

I have – and a lot more than once.

Not too long ago, I made just such a mistake. I pride myself on not losing my temper, not saying anything I’ll regret, only showing respect toward others. However, not too long ago, I said something to someone close to me that I truly regretted. It wasn’t who I am, and certainly not who I wanted to be, but in a really weak, lousy moment on my part, I said something that came out of all of the wrong emotions, and it hurt the other person and violated trust.

For me, I immediately knew I wasn’t just in the wrong, but made a grievous mistake. There’s really only two things we should never do in life: One, never hurt another person’s feelings, albeit someone close or a stranger. And, two, never violate trust. And, I did both.

I called the person the next morning, took full accountability, and was prepared for the person to hang up on me. But, with I suspect some caution, my sincere apology was accepted. However, an apology didn’t resolve much for me; I still felt horrible about what I’d said the eve before. Yet, as I shared with the person, my job wasn’t to pity myself for acting so poorly; rather, my job was to take accountability, to understand what vulnerabilities, insecurities, and character flaws fueled a split-second reaction that I was truly ashamed of. I needed to understand why I did what I did, and strive to never do it again.

We all make mistakes – some more grievous than others, as I’ve done at points in my life. But, the biggest mistake that we can make is to allow a mistake to define us instead of using it as a lesson to refine us. See, when we let mistakes define us, we don’t correct the behavior, we perpetuate it. I failed that class because I’m a bad student…. She dumped me because I’m a jerk…. I lost that job because I’m an idiot…. When we allow mistakes to define us, nothing gets resolved – and there’s truly no accountability.

Yet, look what happens when mistakes don’t define us, but refine us: I failed that class, but I’m going to study harder next semester…. She dumped me, but I know that I need to treat my partner better…. I lost that job, but I’m coming in early and staying late at the next…. When we don’t allow mistakes to define us, but to refine us, it’s the ultimate accountability. Put simply, let’s not say how stupid we are, but show how smart we are by learning from our mistakes.

If we’re alive, we’re going to make mistakes – sometimes really, really bad ones. However, if we let them define us – I’m just an idiot – we’re not learning, but merely propagating the mistake, where we keep making it. Instead, when we make mistakes, let’s learn from them and strive to be refined by them, where we take accountability and grow.

As for me, there’s still refining going on – and always will be. To make mistakes is human; and, so is learning from them.

Bigger, Faster, Stronger

By Mark E. Smith

Alight, I admit it, I’m one of those sentimental fools who gets fired up about the New Year. I’m not about New Year’s resolutions, though. I’m about continuing courses, plotting new courses, and forever getting better at this thing called life. And, I’m stoked for 2013, where my motto is Bigger, Faster, Stronger – that is, in all aspects of my life.

I’m hitting the ground running (not literally, of course, as curing myself of cerebral palsy is far too lofty of a goal!), pumped with a new book project. Books in progress are a bit like creating a new product, where you keep them a bit under wraps till you’re closer to launch (it’s a competitive edge thing). However, it’s about mobility and people – and that’s cool stuff! I’m looking forward to getting out on the road, having some fascinating conversations with mobility and disability icons, and undoubtedly learning more about all of our potentials in life to do what others might not dare in the face of adversity.

My role as father continues as my most cherished. On the one hand, my daughter and I are closer than ever, in a great emotional groove. On the other hand, my daughter is growing up fast, demonstrating such amazing potentials, a dad’s true pride. She’s on the honor role; is in the school and district bands; is a member of the National Thespian Society, and acts; she has her photography currently on display in an art gallery; has an Eagle Scout boyfriend; and, is in driver’s education (first car, March!). So, I’m learning more and more that parenting isn’t about letting go of the rope, but giving a bit more slack – and I’m so proud of not just how she’s handling her independence, but also who she’s becoming as a young woman: compassionate, humble, loving, and sincere. It’s extraordinary to watch as a parent, and my life would be merely a blank page without her. I’ve had my adversities in life, but the single blessing of my daughter trumps them all toward my never-ending gratitude.

Of course, I continue working on myself physically, emotionally, mentally, and spiritually. As iconic wheelchair racer and amazing spirit, Candace Cable, recently flattered me with, “Yes, Mark, I admire your ripped-ness,” I continue working out like a maniac in my gym. I’ll be 42 in March, and I’m physically in better shape than ever. I guess it’s one thing to have cerebral palsy, and another to be middle-age. But, to be both and be ripped… well… that’s an impressive feat, if I say so myself (and I do!). I can’t wait to see how much farther I can push myself in the coming year. Seeing your body sculpted at this age is admittedly fun, especially when few expect it from one with my disability level. But, it’s really the challenge that inspires me – the actual work it takes to literally become bigger, faster, stronger! I met ‘80s icon, Rick Springfield, recently, who’s 63 and he’s totally ripped, so if Rick can look that awesome at 22 years my senior, I better keep pushing bigger, faster, stronger!

Also toward the physical – and admittedly superficial! – I’m growing my hair out for the first time in 15 years. However, I have no intention of just growing my hair out. No, I want the craziest rock-star hair that styling products can make. I want the kind of hair that it takes an hour to make it look that messy. I want the woman in my life to run her fingers through my hair and think it’s the hottest thing ever. I want to come off stage, and have someone say, “That was a great talk, but your hair is freakin’ awesome!” I want to make Russell Brand look sane!

Toward the emotional and spiritual, 2013 turns a major page in my life. I’ve written a lot about my struggling with feeling worthy of love – and, Lord knows I’ve struggled! But, I’m done struggling. I’ve realized that those in my past incapable of truly loving me don’t define my value. I love fully, I strive in my relationships, and I give all that I have to those I love – and they now give back to me. I’m done with this not feeling worthy of love bull. I’m worthy because I’m me, and you’re worthy because you are you. I’m not longing for love or needing love – I am love, and that’s enough. Put simply, I have ridiculous amounts of love to give, and my heart is more receptive than ever – let the love in, baby! And, what’s not to love about a ripped bod and forthcoming rock-star hair?

And, in the area of love, I’m looking forward to catching up with so many great friends in 2013. I believe that the quality of our friends reflects the quality of our character and, ultimately, the quality of our life. I’ve been blessed with developing among the wisest, sincerest friendships that I could fathom. They’re scattered around the country, and my time with each of them throughout the year always teaches me a bit more about myself and life – I never leave a visit or conversation without growing somehow in the process. So, get the guest rooms ready because I’m showing up in 2013 – it’s a priority of mine! (And, when I say, “showing up,” it means I’m like Publishers Clearing House – I’ll just appear on your porch with balloons one morning.)

As for spirituality, I’m totally excited to once again be spending my birthday, the first week of March, in Las Vegas – you know, Sin City. …Wait, that doesn’t sound spiritual at all! Actually, Dave Ramsey is doing a personal growth seminar there that week, titled, “Living a Legacy.” Dave isn’t everyone’s gig, as he mixes the biblical with the practical to convey ethical leadership skills in business, family, and life, but he sure nails his subject matter as a brilliant speaker. So, I’m excited to close the first quarter of 2013 on such an inspired adventure – and further define my legacy in a bigger, faster, stronger kind of way.

Of course, bigger, faster, stronger applies to the mobility industry, as well. We not only have bill H.R. 4378 gaining momentum – which strives to gain complex rehab technology its own funding class and removes the in-home-use-only funding rule – but CELA is a bigger educational event this year, both great causes that I’m focused on (look for my column in the February issue of HME News). On the product side, you will be seeing innovation in a lot of power mobility areas – can’t say what, but cool stuff is in the pipeline.

I could go on and on because I’m so pumped about 2013, but my point is this: I have no New Year’s resolution. But, what I can promise you is that for 2013, I will be bigger, faster, stronger in all parts of my life – namely because I never stop loving, learning, and giving. If we just follow those three paths, we can’t help but become bigger, faster, stronger! …But, rock-star hair takes a little more time.

The Power of Choice

By Mark E. Smith

I recently had the pleasure of speaking to a very large group of diverse professionals – executives, CEOs, managers, and small-business owners.

In a rapport-building exercise, I asked the group to be open and trusting, and by a show of hands, how many of them felt that 2012 was a great year for them? Two of us – yes, I was one of them – raised our hands.

I then asked how many people had a terrible year in 2012, and it was a sea of hands in the air, with seemingly everyone raising their hands.

Then, I asked how many people had an in-between year in 2012, and three people raised their hands.

There was a fairly round number of attendees at the conference, of diverse backgrounds and occupations, and what I realized was that, mathematically, 95% of them raised their hands that they’d had a terrible year.

I went on to do my talk about “recognizing the treasure within each of us,” and then we had a question-and-answer session. And, as is my ultimate blessing and privilege, the program went fantastic, where from the host to attendee surveys, I was noted as the highlight of the conference.

Yet, as my publicist and good friend, Haley, and I got in my van, starting it to leave, I asked, “How is it that 95% of those participants had a terrible year?” It really did trouble me, where I wanted to go back and learn each person’s story. I mean, I know all of us go through tough – sometimes, hellish – times in our lives, so there undoubtedly is more pain in the lives of those around us than we realize. I can only imagine how many people in that room experienced a painful relationship, illness in the family, financial troubles, depression, and on and on during 2012. Yet, to have 95% of a large audience tell me they’ve had a terrible year truly saddened me.

Interestingly, just prior to that conference, I’d read that 63% of Americans feel that the best is past, that only worst times are to come – a record high of discouragement in our country today. Again, I know that these are tough times for many, but the lack of hope and optimism is downright alarming.

All of this reminded me of the hellish times in my life – from the petty like riding my power wheelchair to work in horrible snow storms, to the more serious like finding my mother with her wrists slit on my 10th birthday, to my sister having cancer, to being in painful relationships, and so on – but I don’t recall having what I would label an outright bad year, not to mention a bad week (a bad day, here or there, but that’s to be expected). There’s always some blessing – yes, even during hellish times.

So, what was it that made 2012 a great year for me, as opposed to 95% of my peers that day? Gratitude and personal growth. Sure, I can make the year sound terrible, too: As a full-time single father with cerebral palsy, with the economy in the dumps, and my sister having another cancer scare, the year had its challenges. Yet, while I acknowledged each adversity, I chose not to let them define my year. Instead, I had a great year. My daughter’s doing extremely well, there’s a special lady in my life, I still live totally debt free, my sister is healthy, and I maintain rewarding work. No, my life isn’t easy on the daily basis, but in the larger picture, all is blessed. Why focus on the trying times of 2012, when there’s so much to be thankful for?

And, that’s where all of this ties together. While we can’t control many circumstances that bring adversities into our lives, we always retain the ultimate ability to address them: Are you going to choose to focus on defeat or victory, the challenges or the successes, the curses or blessings? You have the power to choose the perspectives in your life – we all do.

And, it was Haley who raised a great point that day. Maybe the 95% of people at that conference who declared having a terrible year were only thinking of the bad, not the blessings? Despite some adversities, surely there were great moments in all of their lives in 2012 – they were just choosing to focus on the negative, albeit even if just being put on the spot with my question.

For the New Year, I hope more of us employ the conscious power of choice – that is, choosing to focus on the positives. The fact is, focusing on the negative stalls us, while focusing on the positive empowers us. When we’re negative, we dwell; when we’re positive, we accomplish. …And, we know which gets results and inspires us. The power of choice isn’t rocket science.

We’re all going to face adversities in 2013, and of course we should acknowledge and address them. I’m not saying pretend that adversities don’t exist – they do, and the only way to resolve them is to address them. However, rather than hyper focusing on only the negatives in a situation – or, forbid, our whole lives – let us focus on the positives. I’ve never encountered an adversity in my life where there ultimately wasn’t opportunity or blessing. It hasn’t always been immediately evident or timely, but truly, even the worst times of pain have brought my life to higher levels of opportunity and blessing.

So, how do we shift toward the positive powers of choice? …By consciously looking at the positives, and moving our perspectives in that direction – it’s that simple.

Maybe you’re entering the New Year with a relationship on the rocks because you’re both dwelling on the negatives. Get on the same page as a couple, remind each other why you fell in love in the first place, and choose as a team to focus on those positives – don’t settle for an end when you can reignite the beginning. Choose to keep learning, growing, and loving.

Just because the economy is down, doesn’t mean you have to be down – choose to focus on the positives and opportunity – and look for them where you wouldn’t expect. A college buddy of mine was an executive at the country’s largest newspaper chain, but was laid off a year ago based on changing times. He’s been out of work ever since, but has volunteered with Habitat for Humanity, filling his time of adversities with efforts that bless others, having now helped build dozens of homes for those in need. Nevertheless, his actions weren’t always so selfless. His ultimate dream for years was simply to own a Ferrari, loving the car when he finally bought it in 2008. He called me not too long ago and said, “Mark, I have great news – I sold my Ferrari.”

I was puzzled because he loved that car, and it was a dream realized, so how was selling it great news?

“That car was a double blessing in disguise,” he told me. “When I bought it, it was my most prized possession, and when I sold it, it was a true blessing – that car just paid my daughter’s college tuition when I couldn’t have afforded it.”

My friend didn’t look at dreams lost by having to sell his beloved car based on job loss, but he saw dreams realized by using it to pay his daughter’s tuition. He chose to look at the positive in what those who were more superficial may have seen as a disappointment.

Of course, we’re not islands, and those around us have a huge impact on how we see the world and feel. Part of the power of positive choice is choosing who’s in our lives and how we deal with them. In my life, I’ve made big strides over the years to avoid those who bring negativity and drama into my life. I want reciprocating relationships of inspiration – and I’m striving to be that person, as well. If we’re around lousy people, with bleak outlooks, who are emotional and psychological vacuums, we’re going to get sucked into what Dave Ramsey calls the “language of losers,” people who are so negative that they just pull us down. Instead, we should surround ourselves with champions, those who ooze positivity and are our peers in positive outlooks. People who pump us up – who are excited about life – are who we should choose to have around us, just as we should do for others.

With 2013 right around the corner, I still have no idea what it has in store for me. I’m betting that there will be adversity – I don’t know in what form, or how severe, but it will be there. Nevertheless, I’m also betting that I’ll get through it with strides, as I always have, knowing that adversity is always lined with opportunity and blessing. Join me in choosing the power of positivity to make 2013 among our best years ever, regardless of what it brings.

Teeing Off At Love

By Mark E. Smith

Yes, my swing is still off by a millimeter – but, of course, I’m working on it with more determination than ever, as we all should if we’re serious about getting it right. See, I learned that the only difference between the best golfers in the world and the worst golfers in the world is a one millimeter positioning of the head of the club at the point of impact on the ball. That one millimeter at the point of impact dictates whether the ball soars down the fairway, onto the green, or veers off by dozens of yards, into the rough. It all comes down to trajectory, where a slight nuance at the beginning dictates a vastly different outcome.

And, so, in my romantic life, there are days when I’m still one millimeter off, still trying to make right and do right. However, through all sorts of practice – from counseling, to reading, to just taking good ol’ accountability – I keep working on my swing, trying to get that last millimeter right, my love life soaring consistently down the fairway, being both a worthy partner and worthy of a partner. As is the case for a lot of people, loving is easy for me, but feeling fully worthy of love has been the hard part – the last millimeter.

Why is it that truly feeling worthy of love – like hitting a silly, white ball in a straight line – can be so challenging? I mean, for me, I’ve learned at least some of the answers. I know that I started the whole romance thing at four millimeters off, having my parents as the worst coaches – read that, examples – in the world. I actually started in my late teens hitting the ball in the entirely wrong direction, dating emotional vacuums. But, after a few relationships and just wanting to do right by others and just be happy myself, I got better at it all, healthier at it all. But, never perfect. You might say I could keep the ball straighter, but the trajectory always landed me in the rough at the end. Was it my dysfunctions creeping in at the last minute, or just bad luck, a gust of wind that I couldn’t recover from?

And, that’s the baffling part of romantic relationships, isn’t it? When we think we’ve finally hit our best shot – where we strive to love with sincerity and vulnerability, and find love in return – we too often ultimately watch it inexplicably veer off course, saying to ourselves and those around us, Wait! I swear I’ve been working on myself, and gave it my best shot! This isn’t the direction it’s supposed to go! We sometimes want to throw our club in the air, and scream, OK, Lord, I give up – I’m moving into my studio condo in Vegas, getting a cat, and look forward to being the best single grandparent ever!

Yet, we can’t do that. See, the only time we lose in any aspect of life, including love, is when we give up. No, we shouldn’t throw our club in despair, and stomp off of the course. Rather, if we’re patient, someone, somewhere, at the right time, who’s truly compatible, will fall in love with us, accepting us for who we are – with our fully reciprocating – and together with her or him we’ll celebrate the victory of finding the literal sweet spot of life.

But, indeed, it’s the waiting for love that so many of us have struggled with at times in our lives, the right one to enter our lives, wholly, completely. I was recently discussing the topic of love with a spiritual force in my life, a woman wiser and more angelic than anyone I’ve ever known, and she spoke profound words: When the time is right, the right person will come into your life. Life is a waiting game. If we try to rush things, we often short change ourselves.

Similarly, musician and sage soul, Bob Marley, delivered among the most profound takes on love, one that resonates with the emotional availability and valuation that we should all have when we meet the one for us:

Only once in your life, I truly believe, you find someone who can completely turn your world around. You tell them things that you’ve never shared with another soul and they absorb everything you say and actually want to hear more. You share hopes for the future, dreams that will never come true, goals that were never achieved and the many disappointments life has thrown at you. When something wonderful happens, you can’t wait to tell them about it, knowing they will share in your excitement. They are not embarrassed to cry with you when you are hurting or laugh with you when you make a fool of yourself. Never do they hurt your feelings or make you feel like you are not good enough, but rather they build you up and show you the things about yourself that make you special and even beautiful. There is never any pressure, jealousy or competition but only a quiet calmness when they are around. You can be yourself and not worry about what they will think of you because they love you for who you are. The things that seem insignificant to most people such as a note, song or walk become invaluable treasures kept safe in your heart to cherish forever. Memories of your childhood come back and are so clear and vivid it’s like being young again. Colours seem brighter and more brilliant. Laughter seems part of daily life where before it was infrequent or didn’t exist at all. A phone call or two during the day helps to get you through a long day’s work and always brings a smile to your face. In their presence, there’s no need for continuous conversation, but you find you’re quite content in just having them nearby. Things that never interested you before become fascinating because you know they are important to this person who is so special to you. You think of this person on every occasion and in everything you do. Simple things bring them to mind like a pale blue sky, gentle wind or even a storm cloud on the horizon. You open your heart knowing that there’s a chance it may be broken one day and in opening your heart, you experience a love and joy that you never dreamed possible. You find that being vulnerable is the only way to allow your heart to feel true pleasure that’s so real it scares you. You find strength in knowing you have a true friend and possibly a soul mate who will remain loyal to the end. Life seems completely different, exciting and worthwhile. Your only hope and security is in knowing that they are a part of your life.”
― Bob Marley

And, so we should each just keep practicing at it all – learning and growing and loving, in a relationship or single or somewhere in-between – knowing that one day, at the right tee time, we’ll finally shave off that one millimeter blocking our well-formed swings, and all will soar in the direction we and our partners desire – a hole-in-one in life, love, and fulfillment.

Hill Holders for Life

hill

By Mark E. Smith

In the realm of manual wheelchair technology, there’s a mechanism commonly called a “hill holder.” As you push up a hill, the hill holder works as an automatic, one-direction brake – the wheelchair can’t roll backward, only forward, allowing ultimate progress pushing up the hill. In fact, even on the steepest of hills, you can push forward, let your hands off of the wheels, and the wheelchair stays right where you want it, guaranteeing constant progress.

I often think that we need hill holders in life – emotionally, mentally, financially, physically, spiritually. We need a mechanism that prevents backward slides on our momentum. You’ve heard the saying, Two steps forward, one step back… well… that’s our hill holders not working.

No, if we’re to learn, grow, and succeed, we need hill holders firmly in place, where we only go forward in life, not backward. Have you ever paid off your credit cards, only to use them again? Have you ever struggled with an addiction, only to start again? Have you ever vowed to stay out of unhealthy relationships, only to get in yet another one? Have you ever vowed to diet and workout, only to overindulge and go back to being a couch potato? In whole, have you ever tried to make positive changes, forward momentum in life, only to end up going backward, to old patterns? Most of us have, for any number of reasons – returning to negative comfort zones, being scared of progress, low self-esteem… self-sabotaging roots. I know, I’ve been there, and still find myself there at times!

But, that’s where real life hill holders come into play – when things get tough, they keep us from going backward, from losing momentum, from throwing away great progress in our life.

I met an acquaintance who had completely turned around his whole life. He went from divorced, broke, alcoholic, and spiritually bankrupt to having a soul mate, a great career, not drinking, and becoming a pastor – all in about six years. Now, six years is a long time, but to make such complete, radical changes over any period is impressive. When I asked him his secret to success, he said that it started with personal accountability – the ultimate hill holder – but then he went the extra step and only surrounded himself with people who brought out excellent in him (even if we’re not savvy enough to catch ourselves off of track, let’s at least surround ourselves with those who care enough to catch us).

My acquaintance is a great example of installing hill holders in our lives. We may be compelled to go backward toward that which is bad for us – it’s easier to roll back down the hill than to push up it! However, if we do that, our lives never improve, and we never succeed. Instead, hill holders keep our forward momentum, where despite being scared or self-sabotaging or lazy, accountability and our support network kicks in to bolster our progress.

Be brave enough to use hill holders in your life, and you”ll achieve greater vistas than you ever imagined.

Palm Tree in the Wind

By Mark E. Smith

Indeed, my friend, I continue working on this thing called life – physically, emotionally, mentally. I’ve concluded that it’s all a bit like exercise. From the physical to the emotional, if we do nothing, life is effortless. However, such a no-effort approach is also the worst thing for us – we don’t grow, nothing changes, nothing gets easier, things just stay the same or degrade. Yet, like physical exercise, when we put in the effort to change ourselves for the better, we grow and become healthier – and life gets better. It’s the nature of personal growth: It takes effort, but the more we do it, the easier it gets – more intuitive, more natural – and the healthier we get.

I just spoke at the University of Scranton, and a student asked where I got my resiliency as a child? I couldn’t give an absolute answer other than there was something intrinsic in me toward facing adversity. I know that in changing our lives for the better as adults, we need a conscious desire to improve ourselves, as well as an innate inner capacity to accomplish it. There’s often a catalyst for conscious change – and I’ll get to that more in a moment – but the innate part is more complex.

I recently learned about the resilience of palm trees. While all other trees topple in hurricane force winds, the palm bows for hours in horrendous storms, then simply uprights to normal. Oaks, pines, maples, you name it, all topple – but not the palm. I think all of us are born as palms – that is, having utmost resilience – but for some, the roots are eroded by others, where hellish upbringings can kill our capacities to grow beyond the scars that were left. But, fortunately, I wasn’t one of those people whose spirit was ever lost or destroyed. I’ve weathered my storms, but my roots – my capacities to learn, grow, and change – stayed intact.

For a lot of years, I relied on my innate capacities to change and grow, but it wasn’t until the passing of both my parents due to their troubled lives that I truly understood the power of combining innate strength with the conscious desire to change, to move beyond their negative examples and live a better life for myself. It’s one thing to survive and get by; but, it’s another to thrive and do well. I guess with my parents’ deaths, I was able to shake away a lot of shadows, and truly work on moving beyond the pain of my past. It may be a shame that their passing liberated me in ways – that’s not how parent-child relationships should work – but it did put so much of the dysfunction to rest. I guess those who aren’t there anymore can’t hurt us – but the memories still can – and moving beyond both has been my goal for several years now.

And, the newly-made memories are better these days, all of them. I added a fireplace to my master bedroom. No, it’s not a real one, but what they call “vent-free.” But it’s a beautiful mantel, with a realistic flame and logs, and heats the room with a toasty warmth and glow. I also picked out a thick, shag area rug that nicely frames my bed. It all cozies up my space, a tranquil one, where my daughter and I have nightly conversations about her life, my life, our life – life overall. She’s in driver’s education now, with her first formal gallery showing of her photography coming up, and a boyfriend who’s an Eagle Scout. So, there’s a lot to talk about around the fake fireplace and shag rug – warmth abound.

We recently went and saw The Perks of Being a Wallflower. It’s the movie adaptation from the 1990s novel by the same name. A central theme of the movie is, We accept the love we think we deserve, meaning that if we think we deserve little, then that’s what we’ll get, that we should all raise our expectations – in life and love. And, the movie was not lost on who we’re each striving to become, the wounds we’re each healing, the ever-rewarding effort that we’re each putting into loving, learning, and growing.

It’s said that if we don’t address the trauma of our pasts and heal, we statistically will relive it, making ourselves forever either a victim or a perpetrator – or both. If you were raised by an alcoholic, chances are that unless you make a conscious change, along with possessing the innate capacity to do so, you will marry an alcoholic, be an alcoholic, or, forbid, do both. This holds true for any trauma in our lives, where, again, if we don’t address it, we relive it – the only creature on Earth known by science that revictimizes itself. And, I’ve done it, now taking absolute accountability for choosing relationships where I simply found those who fit the mold of those I knew in my insanely dysfunctional upbringing – emotionally unavailable for any number of dysfunctional reasons. However, with my own value at stake – raising the bar on the health and love that I deserve, and breaking the cycle of dysfunction for the sake of my daughter – I continue working on myself, changing my own flawed programming, moving out of the shadows of my past and into the glow of my potential. And, like exercise, it’s been painful getting into shape, and it’s all just scary and confusing at times. But, I just keep working at it – the strength of a lone man just trying to do right.

And, so it’s around the fake fireplace and shag rug that I continue building an ever-inspired life of laughter, love, learning, and growth. Sure, it was once just my daughter and me in a house left both literally and figuratively empty by my ended marriage, repeated dysfunctional patterns from my childhood on. But, now there are new pictures on the walls, a fake fireplace, and shag rug that are just quirky enough to feel so right. Palm trees, my friend, do always find ways to right themselves – it just takes time.

It Happens for Us

By Mark E. Smith

I’m always intrigued when I hear people say, “Life isn’t fair.” It intrigues me because it’s simply never proves true in the long run. See, I’ve learned that while in the short term, bad occurrences – disability, divorce, job loss, addiction, you name it – can seem like they happen to us, they really ultimately happen for us – unexpected blessings that only come from adversity.

I remember in the mid 1990s, just such an example, where a terrible situation that initially happened to me, ultimately proved to happen for me, bettering my quality of life. I was in college and working, not making a lot of money, but enough to own my little 1,100-square-foot home in a borderline part of town. I felt blessed to own the home, but it was in no way ideal – it wasn’t fully accessible, and it needed a lot of expensive repairs. I couldn’t afford to replace the leaking roof, let alone renovate my bathroom to make it fully accessible.

To make matters worse, a big storm hit us, and although I lived on a hill, my side patio flooded, water pouring through the patio doors, filling my entire house with 6” of water. I remember the feeling of helplessness as I watched the water flow throughout my entire house within moments, destroying what little I had.

Soon, the water receded, and I was left with a horrendous muddy, soggy mess. The wall-to-wall carpeting was destroyed; the wall furnaces were destroyed; the sheet rock wicked moisture, needing dramatic repair; and, everything that was on the floor was soaked, from my wheelchair’s battery charger to my couch. I wasn’t sure how I could ever afford to repair my home, not having flood insurance.

However, while neighbors tore out my water-logged carpet and piled all of my destroyed goods on the lawn – my having no way to replace any of it – a FEMA claims inspector came along within a day or two. He assessed my property, and wrote me a several-thousand-dollar check on the spot. Within a week, I received another FEMA check, and with the help of my city’s building department, I was able to get a reputable contractor to start repairing my home.

But, here’s what’s amazing. As the city’s building inspector checked on my home’s progress one day, he noted my accessibility needs. And, within days, he had grant money for me to not only make my bathroom accessible, but to replace the roof and make other improvements. My home was ultimately in far better shape after the flood than before.

My point is, while the flood initially happened to me, it ultimately happened for me. A terrible occurrence was the catalyst for ultimate blessing.

If you truly look at the floods in your life – that is, the adversities that happen to you – you’ll clearly see that they are really happening for you in the end – winter always ushers in spring. I know, you may be thinking, Mark, bad thing after bad thing just keeps happening to me, there is nothing happening for me.

You need to look a little closer, that’s all – and you’ll see how turmoil always leads to triumph. Closed doors always become open doors. My dysfunctional upbringing didn’t happen to me, it happened for me, making me constantly strive to be a better father to my daughter. My ended marriage didn’t happen to me, it happened for me, placing me on a much healthier emotional path that’s brought greater levels of love, laughter, and contentment into my life. My cerebral palsy didn’t happen to me, it happened for me, instilling countless lessons within me as to the extraordinary potentials within all of us.

Really, we should each possess a bring-it-on! attitude, where we know that life plays its roles in magnificently mysterious ways, where vying always leads to victory, where turbulent times are merely life’s good graces getting ready to come our way. The next adversity that you face, remind yourself that nothing happens to you, but for you, where closed doors open, and a flood of prosperity and success are coming your way. Have faith and patience, and you’ll be amazed at how the tides in your life turn.

Flying High

By Mark E. Smith

I smiled – as always – when I rolled up to the airline ticket counter, and offered a friendly good morning to the ticket agent, placing my companion’s identification card and mine on the counter. The agent took our I.D.s, pulled up our tickets, and said, “You’re going to have to check your bag – that’ll be $25.”

“It’s a carry-on,” I replied, glancing at my bag.

“No, it’s too big to be a carry-on,” she replied. “You have to check it.”

“It’s a certified carry-on, and I’ve flown with it countless times as a carry-on, never checking it,” I explained.

“Do you want to fly today or not?” she asked. “”If so, I need that bag and $25.”

I suppose I could have asked to set the bag on the measuring board, or asked to speak to a manager, but I didn’t want to make the agent any angrier than she was, I didn’t want to add any fuel to whatever was burning her up inside that morning. So, I simply checked the bag as she insisted.

As my travel companion and I headed toward security screening, my companion was outraged, not understanding why the agent was so rude? “I don’t know why she was so rude,” I answered. “People are rude all the time. I just hope her day gets better.”

I was heading home from a successful business trip; I was blessed that $25 wasn’t an issue for me to afford; and, I was excited to be going home to my daughter. Really, I was happy to just be on my way – no worries at all.

The fact is, not everyone is going to like you or be kind to you – often for no reason at all. From your own family members to complete strangers, people are going to be rude, unkind, possibly downright mean. However, we have the choice of buying into their misery, or just letting it roll off us like water on glass – not letting it stick. If we know we are living kind, loving lives that give to others, it’s doing ourselves an injustice to let others bring us down. Be yourself – celebrated, not degraded or just tolerated.

I had a nice flight home, ultimately reaching the arms of my welcoming daughter. And, I truly hope that ticket agent’s day turned out just as well.

That Thing Called Integrity

By Mark E. Smith

I did an interview recently, and both the interviewer and my public relations manager both expressed that if any of the questions were too personal, I should feel free to not answer them. And, so I tried to figure out what would be too personal for me to publicly address?

And, I couldn’t come up with what would be too personal for me to publicly answer, especially because the interview was for a mobility industry publication. I mean, it’s not like they’d ever ask if I’ve had sex in my wheelchair, right? But, if they did, I’d pull a Bill Clinton, and ask for a clarification of terms – and then reply with a resounding, Yes, and then share every sordid detail of each encounter that I could squeeze in before my publicist wisely censored me. …So, I was 20, and in the all-girls dorm at Santa Clara University one night, dating this really hot Psych major….

But, alas, to me at least, the questions were strikingly normal – just questions about growing up with my disability. And, then it hit me: I suppose some people do view speaking of their disabilities as too personal to discuss in public. But, not me, and as I got into the interview questions, I had no qualms about answering them, to an as-honestly-personal level as I could.

See, I know that everyone has differing levels of comfort and privacy. But, if you’re going to put yourself out there, don’t hold back. And, I believe that if someone – or, a readership – is candid enough to ask you a question, you owe it to them and yourself to give a completely candid answer, even when a lump develops in your throat and you have to say what you’re going to say in one breath or the tears will start flowing. After all, if you’re not going to expose yourself completely – your heart and soul, fear and shame – you’re lying to everyone, including yourself. It all comes down to a greatly underestimated trait called integrity.

So, I worked my way through the questions with what I learned about Gandhi. He never planned a speech. What he said, felt, and did were so congruent that he spoke solely from intuition and heart. To each question, I just strove to give an authentic answer.

The interview went great, and not thinking much about it, I left the transcript on my kitchen table. My daughter and sister were hanging out that eve, and began reading through it, par for the course, till they got to one specific question and answer:

What do you know now that you wish you knew then?
That I am worthy of love. I mean, I still struggle with it, but not nearly as much as I did in my teens and twenties. My father, till the day he died, expressed shame toward my disability, and my mother always blamed my disability for their divorce (which occurred when I was a toddler). My mother was also a life-long substance abuser and experienced mental illness, so I took the brunt of that chaos, much of which she blamed on my having a disability, as well. So, when you add that into the normal teen equation of wanting to fit in – but not fitting in due to disability – it was hard for me to look at myself in the mirror at, say, 17. Based on a lot of work on personal growth, and raising my daughter, I’ve come a long way toward truly feeling worthy of love – but, admittedly, I still struggle with it at times.

“Wow, that’s really brave of you to publicly share,” my sister said.

“It’s not brave at all,” I said. “It’s just being honest.”